This report focuses on positive practices in providing support services to families of children with severe disabilities and chronic illnesses, based on visits to three sites in Maryland: the Family Support Program at the Kennedy Institute in Baltimore, the Coordinating Center for Home and Community Care, and Sick Kids Need Involved People (SKIP).…

The study examined family support services currently utilized by families of individuals with developmental disabilities, and family support services seen as important by respondent families in the state of Hawaii. A total of 625 questionnaires were distributed via 24 agencies; 234 useable surveys were returned for a 39% response rate. The survey…

This booklet provides an overview of Alzheimer's disease along with a description of the disease, how to find out if someone has it, and how it affects adults with developmental disabilities. It also provides information on what to do and suggests where to seek help. Specific sections discuss: (1) the etiology of the disease; (2) symptoms of…

Used mail survey to assess contributions of voluntary organizations providing for children with life-limiting incurable disorders. Found a variety of services, including information service, emotional support and counseling, patient and family support, and telephone helpline. Respite care was associated with annual budget size. Unstable funding,…

Provides parents and other concerned persons with information about some of the family support services and community-based living arrangements that are currently available to assist families in meeting the needs of their children who are severely and profoundly handicapped and/or chronically ill. Discussion includes funding sources, respite care,…