Family members of children with disabilities have become more involved in their children's care and have adopted the role of primary caregiver. Due to the varying degrees of the condition, children with cerebral palsy (CP) often require greater involvement from their caregivers. Fifteen caregivers for children with CP residing in rural communities…

The newsletter offers perspectives on the provision of family support services for families with disabled members. An introductory article by Madeleine Will, Assistant Secretary for Special Education and Rehabilitative Services, stresses the impressive coping skills exhibited by many such families and their relationship to service professionals.…

This paper proposes an expansion of respite care for families of handicapped children to include early intervention services and informal social supports. The experiences of the Delaware FIRST Program are described, focusing on using family day care as a respite service, training for family intervention, and emphasizing family-oriented resources.…

Family support services are systematic efforts to support natural, adoptive, or foster families who have a family member with a disability. Programs vary in the types of services offered, goals, and number of families served. The most promising approaches to family support provide services that are flexible and individualized, build on informal…

This special issue of a periodical focuses on building support and resources for families of children with special needs. It contains 13 articles in addition to descriptions of 10 programs serving special needs families at the local level, a list of 15 resource organizations and 10 publications/audiovisual aids, and a message from the coalition's…

Provides parents and other concerned persons with information about some of the family support services and community-based living arrangements that are currently available to assist families in meeting the needs of their children who are severely and profoundly handicapped and/or chronically ill. Discussion includes funding sources, respite care,…