Background: Specialist short break services aim to provide enhanced support to family carers as a means of preventing children whose behaviours severely challenge from being placed in full-time residential care. To date, there is limited evidence as to the functioning and effectiveness of such services. Methods: In all, 17 children were selected…

The parent of a severely handicapped child encourages parents to prepare written care plans when leaving a child with others for a respite period. (DB)

A respite care program in New Jersey provides 50 families of mentally alert severely disabled adults with periodic relief. The program, which featured recreational and social activities, promotes the mental health of parents and families. (CL)

Parents of severely disabled or chronically ill children need to find competent baby-sitters for respite as well as opportunities to spend time with other family members. Baby-sitters, who may be found among supportive professionals, community groups, and college sutdents, may be trained to deal with specific child care concerns. (CL)

Respite care is one resource or support service designed to help the family in its role as primary caregiver to severely disabled individuals. Aspects of respite care needing improvement are time allotted per family, more qualified/skilled respite care workers, and choice of type of service. (SB)

Home based respite care for severely retarded and severely disabled persons was evaluated through questionnaires completed by 91 respite care units over a six month period. Ratings of clients' level of disability were compared to those of clients served in the same region in previous years. Disability levels of clients denied services by the pilot…

Respite care for children with severe handicaps and their families has been developed to serve the rural, sparsely populated areas of upstate Wisconsin. Since its' inception, the program has provided a necessary outlet to the families of 51 children at a cost of $34.70 per day. The basic elements of the program lend themselves to being replicated…

The record of the 1985 hearing addresses policy issues concerning families of disabled children. Statements are presented from parents of severely disabled children, educators, researchers, agency personnel, and disabled consumers. Topics addressed include sources of family stress, need for financial and respite services, the effects on other…

Many parents of children with autism and other severe disabilities report heightened levels of stress due to the unique challenges their children present. Respite care is likely to alleviate some of the stress associated with caring for a child with a severe disability. However, it is often difficult for families to identify motivated and…

A parent of a severely handicapped daughter living at home in Alberta, Canada, discusses the need for family support systems such as respite care, reduced rent for needed equipment or vehicles, and financial aid to allow normal family living. Government and family are seen to share responsibility for the handicapped individual. (DB)

Findings of an evaluation of a pilot home-based respite care program designed to serve 35 severely mentally retarded and disabled persons were reported. Results indicated that respite care services had never been previously received by 51.8% of the families. (Author/SB)

This fact sheet summarizes issues in the provision of respite services for families with children suffering from severe emotional disturbances. Background information supports the unmet need for respite care services to families caring for such children at home. A definition of "serious emotional disturbance" is provided and typical…

A home-based respite care program for children and young adults with severe and multiple disabilities was conceived and developed by a group of parents and community members. A needs assessment revealed the scarcity of respite care in the Cambridge, Massachusetts area. A pilot program was begun to test the model on a limited basis. Evaluation of…

Described is Wisconsin's boarding home program for seven deaf-blind children. (CL)

This report focuses on positive practices in providing support services to families of children with severe disabilities and chronic illnesses, based on visits to three sites in Maryland: the Family Support Program at the Kennedy Institute in Baltimore, the Coordinating Center for Home and Community Care, and Sick Kids Need Involved People (SKIP).…