Summarizes lessons learned from listening to individuals with disabilities at the fourth National Self-Advocacy Conference, "The Beat Goes On: Rhythms of the Self-Advocacy Movement." Discusses the views of the organization, Self Advocates Becoming Empowered, which addresses ways to support people who are in institutions and specific strategies for…

Results of questionnaire data from 98 consumer groups in the United States and Canada are reported in terms of characteristics of local chapters, participants, and change occurring as a result of group involvement. Findings suggest the viability of the self-help/self-advocacy consumer movement for persons with mental retardation. (Author/CL)

Four recommendations are provided for developing self-advocacy in individuals with mental retardation, to support national and local advocacy organizations. Guidelines include making specific and concrete recommendations, expressing one's needs, appreciating all stakeholders' limits, and appreciating that change is often slow. (PB)

A table lists the total number of self-advocacy organizations for people with developmental disabilities, by state, for the years 1990, 1993, and 1995. The total number of such organizations grew from 374 in 1990 to 743 in 1995. (DB)

Suggestions are provided for mental retardation service providers interested in closer cooperation with the self-advocacy movement. Tips emphasize sharing information, establishing local self-advocacy groups, encouraging convention participation, encouraging staff involvement, listening to consumers, and listening to the voices of the…

Interviews with 22 adults with mental retardation suggest that, although they and other individuals with mental retardation have participated in various roles in research and training, there are many barriers to meaningful consumer involvement (such as professional jargon) and there is a need to bring out individuals' strengths and capabilities.…

A man with a developmental disability discusses the self-advocacy movement, the cruelty of stigmatizing labels such as "mentally retarded," and the need for greater involvement in professional organizations such as the American Association on Mental Retardation. He proposes a joint conference with a self-advocacy organization. (DB)

This article discusses how outside contributions and interests can place self-advocates in danger, how personal issues of advisors may place self-advocates in danger, a way for advisors to resolve their personal issues, and strategies that advisors can employ to assist and support self-advocates if they are in dangerous situations. (CR)

This study used surveys, interactive focus groups, and telephone interviews to explore the concept of advocacy and advocacy activities experienced by 32 parents and 11 individuals with developmental disabilities. Advocacy activities and supports (such as communication skills and networking) and barriers to successful advocacy (such as costs and…

A woman with a developmental disability discusses self-advocacy, the need for self-advocates to be involved in professional organizations, and the need for professionals and society at large to be more inclusive in their attitudes and behaviors. (DB)

Partners in Policymaking is an ongoing, federally funded empowerment and self-advocacy education program for individuals with developmental disabilities and their families in Minnesota which is being replicated in other states. A survey of 130 program graduates indicated satisfaction with the program and the presence of many active citizen…

This article discusses four necessary elements of the self-advocacy movement: gaining awareness of one's social and political situation; gaining awareness of individual strengths and potential; taking action through participation in community organizations; and having advisors collaborate with people with disabilities rather than treating them as…

A telephone survey examined self-reported training needs of 90 advisors to self-advocacy groups for people with mental retardation. Major findings addressed desired training topics, preferred training formats, hours and frequency of training, how training needs change, and differences in training based on advisor demographic data. Analysis…

An individual with a developmental disability discusses self-advocacy, involvement with the American Association on Mental Retardation, dislike of the term "mental retardation," the need for such organizations to work more closely with people who have disabilities, and the need for such organizations and society at large to be more…

This study characterized individual advocacy performance differences of 3 individuals with developmental disabilities and 21 parents before and after participating in training programs called Partners in Policymaking. A three group taxonomy of advocate development (beginner, involved, and activist) is suggested. (DB)