This paper reports on a portion of a study on community support and respite for families of children with disabilities in New South Wales (Australia). This part of the study focused on identification of factors influencing families when making decisions about caring for their young child at home or seeking an out-of-home placement. The study used…

This public awareness package is designed to help crisis nursery and respite care programs for families with special needs children to increase the visibility of the programs' services, increase use of their services by families, enhance collaboration with other agencies, and assist with fund-raising efforts. It describes the advantages and uses…

This fact sheet reviews the role of advisory boards and boards of directors in the context of crisis nursery and respite care programs for families with special needs members. Typical responsibilities of advisory boards are listed, including program creation and planning, development of program policy, planning and implementing public relations,…

This fact sheet points out that knowledge of the process of grief (defined as one's own personal experience of loss) and ways of helping individuals and families cope with their loss experiences can be an invaluable asset to crisis nurseries and respite care programs and their service providers. The fact sheet lists the emotions of grief, and…

Respite and in-home services have been identified by caregivers as vital for maintaining a frail older person in the community. A program called The Alzheimer Support/Tender Loving Caregivers Project was undertaken in northwest Indiana to strengthen the informal support network of disabled elderly in the community. An interfaith coalition of…

Studies consistently have found that caregivers who use respite care are satisfied with and appreciate such care. However, preliminary evaluations of the effect of respite care on caregiver burden have had mixed, limited, and in some cases null empirical findings of program effectiveness. This study explored the relationship between caregiver…

A mute autistic boy whose special education in seven programs enabled him to change from a hyperactive destructive child to a pensive lovable teenager gradually adjusted to placement in the Utah State Training School for retarded children during his parent's vacations. (MC)

Available from: Canadian Association for the Mentally Retarded, Kinsmen National Institute on Mental Retardation Building, York University, 4700 Keele Street, Downsview, Ontario M3J 1P3, Canada. A resource home in Saskatoon, Canada, for families of mentally handicapped children provides planned holiday relief for natural and foster families,…

Recounts the aftermath of Hurricane Gloria and necessity of frail individuals to be hospitalized for respite care due to loss of home services. Advances a new category of respite care which includes care for losses related to natural disasters. Describes characteristics of individuals requiring such care and specific reasons for their care.…

Burden of caregivers was less when more visits were paid to the dementia patient by other relatives. Severity of behavioral problems was not associated with higher levels of burden. The results suggest the importance of providing support to caregivers as a critical step in community care. (Author)

A case study of a 25-year-old man with moderate mental retardation who engaged in self-injurious behavior included a functional analysis to determine the effects of the presence and absence of respite care. Results demonstrated a relationship between the presence of self-injury and the occurrence of respite care the previous evening. Altering the…

Conducted baseline interviews with 642 caregivers of aged Alzheimer's disease patients, then assigned one-half to formal respite care. Over 12 months, families with respite care maintained Alzheimer's patient significantly longer in community than did caregivers without respite. Respite care was ineffective for caregiver burden and mental health,…

A survey of parents/caregivers of a child with an autism spectrum disorder (ASD) was conducted to examine the relationship between ASD characteristics, family functioning and coping strategies. Having a child with ASD places considerable stress on the family. Primary caregivers of a child with ASD from a regional and rural area in Victoria,…

This paper outlines the views of key policy makers, implementers and practitioners on Valuing People (Department of Health, "Valuing people. A new strategy for learning disability for the 21st century," The Stationary Office, London, 2001). It reports a series of interviews conducted in 2003/2004 with a diverse selection of people…

Children with disabilities receive most of their support from families. While most family caregivers are mothers or fathers, grandparents are increasingly providing care for children with disabilities. In addition, family caregivers come from diverse cultural backgrounds that impact their views on disability. This paper reviews the literature on…