ERIC Number: EJ1273716
Record Type: Journal
Publication Date: 2020-Dec
Pages: 10
Abstractor: As Provided
ISBN: N/A
ISSN: ISSN-1354-4187
EISSN: N/A
Person-Centred Respite Supports: The Perspectives of Adults with Intellectual Disabilities in Ireland
British Journal of Learning Disabilities, v48 n4 p281-290 Dec 2020
Background: Respite supports are highly valued by persons with disabilities and their families/carers. In Ireland, there has been regular commentary in relation to a lack of respite services, with users and other stakeholders reporting limited access, inequity of provision, and long waiting lists for support. Materials and Methods: Much of the research on respite focuses on the views of carers, with little account of the experiences of persons with disabilities. This study examines the perspectives of twenty-eight adults with intellectual disabilities; most are regular users of traditional and/or alternative respite services. Information was gathered through individual interviews and focus groups. Findings: Participants identified nine key elements of a person-centred respite service; fun, time and space, choice, independence, friendships, compatible groupings, positive relationships with staff, flexible supports, and user involvement in service design and delivery. Conclusions: Person-centred supports should enable individuals to achieve maximum well-being and flourish in all aspects of their lives. This study found that at a personal level, respite services and the interactions that occur within them are person-centred in that they support the individual to do the things they want to do, make everyday choices, try new activities, develop positive relationships, and have a good quality of life. However, at the level of service planning and decision-making, there is less evidence of a person-centred approach. Participants reported having little involvement in the design and delivery of respite services at local or national level. The development of a respite policy in Ireland, that considers the views of respite service users, would be welcome.
Descriptors: Respite Care, Intellectual Disability, Adults, Foreign Countries, Learning Experience, Interviews, Focus Groups, Program Effectiveness
Wiley. Available from: John Wiley & Sons, Inc. 111 River Street, Hoboken, NJ 07030. Tel: 800-835-6770; e-mail: cs-journals@wiley.com; Web site: https://bibliotheek.ehb.be:2191/en-us
Publication Type: Journal Articles; Reports - Research
Education Level: N/A
Audience: N/A
Language: English
Sponsor: N/A
Authoring Institution: N/A
Identifiers - Location: Ireland
Grant or Contract Numbers: N/A