Unpaid (informal) family caregivers provide vitally important supports to people with intellectual and developmental disabilities (IDD), but receive little support or training. This study's aim was to examine how states across the nation supported informal family caregivers in their Medicaid Home- and Community-Based Services (HCBS) programs for…

The evidence that the birth of a child with a disability leads to divorce or separation is equivocal, with the majority of recent research suggesting that such a birth and childrearing may be stressful, but not necessarily toxic, to the caregiver relationship. Such research has been limited by small sample sizes and nonrepresentative samples and…

Respite care for parents of mentally retarded children may be provided through such services as placement agencies, group day care, existing community residences, state residential facilities, funding conduits, and camperships. Partlow State School and Hospital in Alabama has sorted an increasing number of families, since its inception in 1980.…

The paper examines issues of respite care specifically as they relate to developmentally disabled persons in Minnesota. A review of the literature focuses upon the status of respite care services in the state as well as the need for respite care and its role in an array of family support services. Family services are described in terms of those in…

A social anthropologist and a child psychologist interviewed 171 Norwegian families with preschool children having nine different handicaps regarding consequences of the handicap for the family, respite care assistance, kindergartens, home help, community aid, and financial assistance. Findings indicated the major problem to be underutilization of…

This report describes the Home and Community Based Services (HCBS) Waiver to section 1915 (c) of the Federal Social Security Act that was obtained by the New York State Office of Mental Health. The HCBS Waiver affects the services provided to children and adolescents with serious emotional disturbances. Three statutory requirements are included in…

This "Feature Issue" of the quarterly journal "Impact" presents 19 brief articles on family support systems in the United States for persons with developmental disabilities and their families. Emphasis is on provisions of Public Law 99-457. Articles include: "Family Support in the United States: Setting a Course for the…

This brief paper reviews six studies which examined out-of-home placement by Israeli parents of children with severe developmental disabilities. Implications for policy and practice are drawn, including the need for respite-care services, extended hours in schools, recreation programs, support services for parents, and training programs for…

This report examines respite care services that provide temporary relief to family members and other caretakers of children at risk of abuse or neglect including children who are mentally retarded, behaviorally disturbed, physically disabled, or chronically or terminally ill. In 1988 the 25 states surveyed funded 111 respite care programs as did…

Developed by Project TRAC--Training/Resources Acquisition and Control, the three part guide is for parents of multiply handicapped children. Part 1 examines a public school training program for multiply handicapped children. Part 2 gives suggestions for activities that can make home life easier and at the same time provide learning experiences for…

This policy brief reports on a study of how families and agencies cope with growing waiting periods for community services for adults who have mental retardation or developmental disabilities (MR/DD). Preliminary information looks at reasons for long waits, characteristics of families waiting for services, and impact of adult members with MR/DD on…

This paper profiles nine model programs for supporting families who care for a child with a severe illness or one or more disabilities and discusses current trends as they emerged from interviews with key persons in the field. Core components examined include self-help, advocacy, parent education, respite care, family-centered case management, and…