Parents of 36 autistic children were assessed on child functioning and family stress variables in relation to use of respite care services. Results suggest that parents with more difficult children need and use respite care more than others. Nonusers of respite care reported a higher perception of social support than users. (JDD)

A survey of 124 families with mentally retarded children identified those families who did and did not use respite care services. Families who tended to use respite care were larger, made greater use of professional support services, and had children with more severe handicaps and more serious behavior problems. (Author/JDD)

This paper reports on several projects conducted in Georgia over the past 2 years that move the development of respite care services toward the goal of becoming a "cooperative, collaborative, and coordinated" effort. An overview of respite care in Georgia is provided as well as a summary of strategies used to provide such care. Emerging…

This paper proposes an expansion of respite care for families of handicapped children to include early intervention services and informal social supports. The experiences of the Delaware FIRST Program are described, focusing on using family day care as a respite service, training for family intervention, and emphasizing family-oriented resources.…

This collection of papers presented at a 1996 conference on children's mental health research focuses on studies of family participation. Individual papers have the following titles and authors: (1) "Measuring Satisfaction with Community-Based Services for Children with Severe Emotional Disturbances: A Comparison of Questionnaires for Children and…

The Delaware FIRST Program is designed to meet the needs of handicapped infants and toddlers through trained family day care providers. The program is based on a developmental family systems approach. It strives to provide families with ongoing support by offering mainstreamed family day care or respite care, by developing and/or facilitating an…

This special issue of a periodical focuses on building support and resources for families of children with special needs. It contains 13 articles in addition to descriptions of 10 programs serving special needs families at the local level, a list of 15 resource organizations and 10 publications/audiovisual aids, and a message from the coalition's…

These guidelines are intended to assist states and local communities in developing quality respite services that meet the diverse needs of families and children with disabilities, with chronic and terminal illnesses, or at risk of abuse or neglect. The guidelines support the philosophy that all families can benefit from temporary intervals of rest…

This study examined provision of services to children with developmental disabilities and their families in the context of requirements of Part H of the Individuals with Disabilities Education Act, which requires family centered services for infants and toddlers. Focus group discussions were held with health professionals at two sites in each of…

Described in this report is the Saturday Afternoon Free respite care program for moderately to severely handicapped children operated under the auspices of the Idaho State University (ISU) College of Education. In service for 4 years, it has been evaluated by parents and student participants as excellent. It was developed in response to the need…

An increasing number of American grandparents, from all socioeconomic and ethnic groups, have taken on the role of surrogate parents to their grandchildren. Reasons behind this trend involve a variety of family circumstances, including the death of one or both parents, parental abandonment, the high incidence of divorce, an increase in the number…

This final report describes activities and accomplishments of a federally supported program to provide services for children with deaf-blindness in Missouri. The project focused on the development, implementation, and evaluation of a four-component statewide comprehensive service delivery model to serve 193 deaf-blind children and youth through:…

This monograph describes Families First, a family-designed system of mental health care for children in Essex County, New York. Philosophical principles of family-driven service delivery are outlined and illustrated with comments from participants. The planning that went into developing the Families First program is described, including initial…

This report describes a model designed to provide family-centered, community-based coordinated services for families and their children with chronic health care needs. The model, which was implemented to serve 208 children over a 5-year period, is based on three key concepts: families should have the choice to receive services in their homes and…

This final report discusses the activities and outcomes of Partners Plus: Families and Caregivers in Partnerships, a model demonstration project designed to expand respite care options for families of children (birth to 8 years old) with disabilities. The program uses a natural and family-centered model that involves families in the design,…