A key aspect of engaging in a large participatory action research (PAR) project is ensuring that novice participant-researchers have a general understanding of the PAR methodology. Lead researchers experienced in action research cannot expect novice participant-researchers to engage fully with the literature on PAR, but rather need a simple way to…

This paper will explore the dichotomy of direction and stimulus through a reflection on arts-based methods used in a research study into post-industrial communities in South Wales and consider whether in participatory processes, a catalyst for artistic creativity could become construed as researcher-led control over the activities. Through an…

This article discusses a participatory action research (PAR) team's response and adaptation to the COVID-19 pandemic amid multiple crises in Puerto Rico. Drawing on an ethnographic study of a PAR collaboration, the article: 1) examines four key dilemmas that emerged during the study, 2) emphasizes the significance of reciprocal partnerships…

Autism science faces several conceptual and ethical challenges. These include fundamental issues such as how to characterize autism and the fact that research findings and how they are interpreted sometimes contribute to negative perceptions of autistic people. We argue that some of these challenges can be addressed by centering the perspectives…

Dominant knowledge systems rely on a Western perspective of creating and disseminating new information. These systems marginalize traditional ways of knowing including co-creating knowledge, personal narratives and lived experiences, as well as inherited cultural knowledge. Additionally, Western knowledge systems have centered the White adult male…

Obtaining informed consent can be challenging during peer research when the boundaries between researcher and participant are blurred. We developed a novel visual consent method with illiterate artists in Nepal who conducted peer interviews in their communities. Artists discussed and sketched images related to ethical principles to create a visual…

Millions of people worldwide have experienced abrupt and traumatic disruption in the flow of their personal life story as a result of stroke and the onset of aphasia. For each one who survives and embarks on the journey toward recovery, their unique and evolving narrative yields gems of wisdom borne of the experience. This wisdom is shared with…

Purpose: This article examines the power relationships between researcher and participants, children and adults, drawing on the theories of transgressions and resistance in power, during a research project concerning children's experiences of the visual arts. Design/methodology/approach: Data were gathered conducted in two Scottish primary schools…

Youth participatory action research (YPAR) provides a model for youth leadership in research aimed at tangible improvements to their lives. We employed YPAR with queer and trans young adults in a qualitative study about trans high school youth. In this paper, we highlight the importance of relationships, dialog and reflexivity to ensuring ongoing…

Positionality statements, or statements acknowledging relevant background, context, and situatedness of researcher positions and identities are widely used in qualitative research. In recent years, public claims of insider status have been contested by the communities in question, often popularized in mainstream media. This article explores the…

The involvement of people with lived experience in the design, implementation and evaluation of services has grown significantly in recent years. In parallel, the evidence base for best practice in peer research, as this approach is described, is also expanding. Sharing two practice examples, the authors reflect on key learning emerging from their…

Place-based knowledge, a legacy from our ancestors, is inherently sustainable. However, modern lifestyles have eclipsed this wisdom, leading to environmental issues such as land and water pollution. Similarly, the current pedagogical practices often fail to connect place-based knowledge. It resulted in a deviation of students' contextual learning.…

The importance of participatory autism research is discussed in relation to a project involving six autistic researchers and five non-autistic university researchers collaborating to investigate anxiety in autistic adolescents. The paper describes the process of establishing a research partnership and the values and philosophy behind this…

Participatory Action Research (PAR) brings unique ethical challenges. Scholars have developed seven ethical principles to address these challenges. So far, little has been published on how these ethical principles (are put to) work in different fields. We used the principles to evaluate our collaboration with co-researchers with developmental…

This article focuses on the process of establishing, defining, and making sense of relationships with undocumented college students as co-researchers in participatory action research (PAR). Using memos and narratives with thick descriptions of critical moments that emerged during a qualitative higher education PAR study, the author examines the…