The current system of ethical oversight in the United States is based on Institutional Review Board (IRB) review. The system was established in response to well-known and egregious mistreatment of subjects in both biomedical and social and behavioral research. In the decades since the research regulations were enacted, reaction to the burden of…

The five SEERNet digital learning platforms (DLPs) present unique opportunities for researchers by offering tools, processes, and infrastructure to make research more efficient, scalable, and relevant. However, conducting research within a DLP may require a shift in a researcher's orientation or mindset in how they think about potential research…

Enzyme kinetics and inhibition studies are crucial in biochemistry education and research. Conventional methods often require expensive equipment and reagents, potentially limiting their accessibility in limited resource settings. Our approach sought to develop a cost-effective experimental design for studying enzyme kinetics and inhibition.…

Background: Down Syndrome is the most common genetic disorder associated with intellectual and developmental disabilities. Research to improve health care outcomes in Down Syndrome lags significantly behind other disease categories. Among these reasons are funding, recruitment and availability of research studies being conducted. Methods: We…

Common method variance refers to the amount of uncontrolled systematic error leading to biased estimates of scale reliability and validity and to spurious covariance shared among variables due to common method and/or common source employed in survey-based researches. As the extended use of self-report questionnaires is inevitable, numerous studies…

Background: "I'm Me" is a creative research project co-created between York St John University and Mind the Gap, investigating learning disabled and autistic artists' understandings of identity, representation and voice. Methods: In this paper, we use Walmsley and Johnson's criteria for inclusive research to reflect on the involvement of…

In this perspective, we argue that the regular use of diversity advisory boards in autism research will improve the inclusivity and participation of marginalized groups in autism research and intervention development. We define a diversity advisory board as a representative group of community members, scholars, policymakers, and area experts that…

By illuminating why and how interventions work in real world settings, Implementation Research (IR) is a powerful tool for increasing the likelihood that evidence-based interventions, programmes and policies are successfully implemented. The insights that IR generates help bridge the 'know-do gap'--the gap between what we know works and what…

Studies of autistic traits in the general population are becoming increasingly prevalent. In this letter to the editor, we caution researchers against framing and interpreting studies of autistic traits in the general population as extending to autism and implore them to be clear about when their study sample does and does not include autistic…

This paper considers the ethical and practical issues of recruiting for, and administering a quantitative survey with marginalised populations. These issues were identified through a focus group discussion, which consolidated and expanded upon informal conversations held previously by five researchers about their experiences of conducting a…

Background: Research outcomes on intellectual development and related disabilities in North Korea are not widely known. Therefore, the current scoping review aimed to provide preliminary insight on research topics concerning intellectual disabilities in North Korea. Method: A six-stage framework for scoping review was adopted to examine research…

In this article, we explore ethical issues of Deaf people's engagement in research. To focus on the perspectives of Deaf people, we investigated existing qualitative and mixed methods research within a qualitative evidence synthesis. Our synthesis is based on a systematic database search (Scopus, PubMed) and reference check of included papers…

Contemporary North-South research collaborations are fraught with power relations originating in colonialism. Debates about research ethics have tended to turn around the "procedural ethics" formal model and the "everyday ethics" practical model. We build on that to suggest a second debate that scrutinises ethics and power…

Programs that improve teaching effectiveness represent a core strategy to improve student educational outcomes and close student achievement gaps. This article compiles empirical values of intraclass correlations for designing effective and efficient experimental studies evaluating the effects of these programs. The Early Childhood Longitudinal…

Many ethical concerns in online big data research stem from a pervasive assumption that data are disembodied and place-less. While some scholars have begun addressing the ethical dilemmas of big data, few offer approaches or tools that fully grapple with the situatedness of online data and its ethical implications. We draw on feminist new…