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Direct linkDavies, Hugh; Munday, Rosie; O'Reilly, Maeve; Hamilton, Catriona Gilmour; Ardahan, Arzhang; Kolstoe, Simon E.; Gillies, Katie – Research Ethics, 2023
Research consent processes must provide potential participants with the necessary information to help them decide if they wish to join a study. On the Oxford 'A' Research Ethics Committee we've found that current research proposals mostly provide adequate detail (even if not in an easily comprehensible format), but often fail to support decision…
Descriptors: Research, Informed Consent, Participation, Decision Making
Westcott, Jordan B.; Epstein, Dryden; Wiley, Benjamin; Westcott, Jess M.; Welfare, Laura E.; Catalano, Chase – Counselor Education and Supervision, 2023
Sexual orientation is often invisible in counseling research despite increasing LGBQ+ identity in the United States. We used consensual qualitative research to explore considerations from LGBQ+ counseling researchers for collecting sexual orientation. Three domains emerged: risks, benefits, and methodological considerations. Our findings highlight…
Descriptors: Counseling, Counselor Training, Sexual Orientation, Research
Download full textNewcombe, Nicolina – Waikato Journal of Education, 2022
Obtaining ethical approval for my PhD research with adults with learning (intellectual) disabilities presented an unexpected challenge of learning to work with two sets of guidance: the United Nations Convention on the Rights of Persons with Disabilities (CRPD), and the Ethical Conduct in Human Research and Related Activities Regulations (HRR).…
Descriptors: Ethics, Adults, Intellectual Disability, Civil Rights
Gjermestad, Anita; Skarsaune, Synne N.; Bartlett, Ruth L. – Journal of Intellectual Disabilities, 2023
People with profound and multiple learning disabilities are often excluded from the processes of knowledge production and face barriers to inclusion in research due to cognitive and communicative challenges. Inclusive research--even when intending to be inclusive--tends to operate within criteria that exclude people with profound and multiple…
Descriptors: Severe Intellectual Disability, Inclusion, Research, Interpersonal Communication
Dalton-Brown, Sally – Research Ethics, 2022
Learning about research ethics and research integrity is greatly facilitated by case studies, which illuminate, ground and personalise abstract questions. This paper argues that fiction can provide similar learning experiences, incarnating ethical dilemmas through a medium that is highly accessible yet sophisticated in its depictions of how…
Descriptors: Ethics, Research, Fiction, Animals
Mary Bottomley; Jodie Bradley; Lisa Clark; Bryan Collis; Bojana Daw Srdanovic; Victoria Farnsworth; Annie Ferguson; Dan Goodley; Andrew Fox; Nikita K. Hayden; Charlotte Lawthom; Rebecca Lawthom; Claudia Magwood; Robert McLean; Ian Middleton; Alison Owen; Matty Prothero; Simon Rice; Simon Richards; Katherine Runswick-Cole; Kelly Scargill; Rohit Shankar; Toni Ann Wood – British Journal of Learning Disabilities, 2024
Background: We are a research team of clinical, academic and advocacy-based researchers with and without learning disabilities, working on the "Humanising Healthcare" (for people with learning disabilities) project. The project is dedicated to finding and sharing healthcare practices that enhance the lives of people with learning…
Descriptors: Ethics, Learning Disabilities, Guidelines, Researchers
Traianou, Anna; Hammersley, Martyn – International Journal of Social Research Methodology, 2021
It is widely assumed that researchers must normally secure informed consent from participants if research is to be ethical. But what exactly are people being asked to consent to? Most obviously, it is to supplying, or providing access to, data; but are they also agreeing that this data can be used in any way relevant to the research, or do they…
Descriptors: Research, Informed Consent, Civil Rights, Personal Autonomy
Carly Seedall; Lisa Tambornino – Research Ethics, 2024
This scoping review maps research ethics and integrity challenges and best practices encountered by research actors in the DACH countries (Germany, Austria, and Switzerland), including researchers, funders, publishers, research ethics committees, and policymakers, during the COVID-19 pandemic. The COVID-19 pandemic brought research and, in turn,…
Descriptors: Research, Ethics, Integrity, Barriers
Nabukenya, Sylvia; Ochieng, Joseph; Kaawa-Mafigiri, David; Munabi, Ian; Nakigudde, Janet; Nakwagala, Frederick Nelson; Barugahare, John; Kwagala, Betty; Ibingira, Charles; Twimwijukye, Adelline; Sewankambo, Nelson; Sabakaki Mwaka, Erisa – Research Ethics, 2022
This study aimed to explore experiences and practices of key research team members in obtaining informed consent for pharmacogenetics research and to identify the approaches used for enhancing understanding during the consenting process. Data collection involved 15 qualitative, in-depth interviews with key researchers who were involved in…
Descriptors: Researchers, Pharmacology, Drug Therapy, Acquired Immunodeficiency Syndrome (AIDS)
Scott-Barrett, Juliet; Cebula, Katie; Florian, Lani – International Journal of Research & Method in Education, 2019
This study explores the opportunities and dilemmas that have been encountered by researchers seeking the views of young people with autism. Twelve researchers were interviewed about their experiences in this field. Through exploration of the complex methodological and ethical issues that they encountered, this study aims to better understand how…
Descriptors: Autism, Interpersonal Relationship, Children, Youth
Matthiesen, Noomi; Szulevicz, Thomas – Anthropology & Education Quarterly, 2018
Doing research into the everyday lives of one's own children allows for a unique in-depth insight into the complexities of educational life. This article discusses the ethical dilemmas of this kind of research including issues of power, consent, emotional involvement, objectivity, and researcher positioning, arguing that research is always a…
Descriptors: Ethics, Research, Power Structure, Informed Consent
Goodrich, Kristopher M.; Luke, Melissa – Journal for Specialists in Group Work, 2017
This article provides a primer for researchers exploring ethical issues in the research of group work. The article begins with an exploration of relevant ethical issues through the research process and current standards guiding its practice. Next, the authors identify resources that group work researchers can consult prior to constructing their…
Descriptors: Ethics, Research, Group Activities, Informed Consent
McGinn, Michelle K. – Canadian Journal for the Scholarship of Teaching and Learning, 2018
Despite now long-standing recognition of the value and importance of the scholarship of teaching and learning, questions continue to be raised about how to satisfy the hybrid responsibilities of teaching and research. The key message of this paper is that instructor-researchers, educational developers, and research ethics personnel should consider…
Descriptors: Foreign Countries, Scholarship, Instruction, Learning
Chang, Rosemary L.; Gray, Kathleen – Journal of Computing in Higher Education, 2013
The unique features and educational affordances of Web 2.0 technologies pose new challenges for conducting learning and teaching research in ways that adequately address ethical issues of informed consent, beneficence, respect, justice, research merit and integrity. This paper reviews these conceptual bases of human research ethics and gives…
Descriptors: Web 2.0 Technologies, Ethics, Committees, Educational Research
