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Ethics Review of Artistic Research: Challenging the Boundaries and Appealing for Care
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Hugo Boothby – Research Ethics, 2024
In 2019, a new national Ethics Review Authority (Etikprövningsmyndigheten, EPM) was created in Sweden. In 2020, Sweden's "Ethical Review of Research Involving Humans Act" was revised, tightening this legislation, and increasing penalties for its infraction. This article draws on empirical material generated by artistic research conducted…
Descriptors: Foreign Countries, Musicians, Disabilities, Legislation
Ethics of Research Engagement with Deaf People. A Qualitative Evidence Synthesis
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Tomasz Krawczyk; Jan Piasecki; Mateusz Wasylewski; Marcin Waligora – Journal of Deaf Studies and Deaf Education, 2024
In this article, we explore ethical issues of Deaf people's engagement in research. To focus on the perspectives of Deaf people, we investigated existing qualitative and mixed methods research within a qualitative evidence synthesis. Our synthesis is based on a systematic database search (Scopus, PubMed) and reference check of included papers…
Descriptors: Ethics, Research, Deafness, Attitudes
Co-Producing Ethics Guidelines Together with People with Learning Disabilities
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Mary Bottomley; Jodie Bradley; Lisa Clark; Bryan Collis; Bojana Daw Srdanovic; Victoria Farnsworth; Annie Ferguson; Dan Goodley; Andrew Fox; Nikita K. Hayden; Charlotte Lawthom; Rebecca Lawthom; Claudia Magwood; Robert McLean; Ian Middleton; Alison Owen; Matty Prothero; Simon Rice; Simon Richards; Katherine Runswick-Cole; Kelly Scargill; Rohit Shankar; Toni Ann Wood – British Journal of Learning Disabilities, 2024
Background: We are a research team of clinical, academic and advocacy-based researchers with and without learning disabilities, working on the "Humanising Healthcare" (for people with learning disabilities) project. The project is dedicated to finding and sharing healthcare practices that enhance the lives of people with learning…
Descriptors: Ethics, Learning Disabilities, Guidelines, Researchers
Big Ideas That Changed the World of Disability: Exploring Theory with Self-Advocates
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Nicola Grove; Simon Richards; Simon Rice; Claudia Magwood; Bryan Collis; Steffen Martick; Saskia Schuppener; Gertraud Kremsner; Elizabeth Tilley; Jan Walmsley – British Journal of Learning Disabilities, 2024
Background: Inclusive research has sidelined discussion of theoretical issues with researchers with intellectual/learning disabilities. This is a situation which the Big Ideas initiative sought to change. Between 2021 and 2023, the Open University, Leipzig University and the University of Koblenz organised nine workshops to explore influential…
Descriptors: Electronic Learning, Workshops, Inclusion, Learning Disabilities
Evaluating Lifeworld as an Emancipatory Methodology
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Hodge, Nick – Disability & Society, 2008
Disability research is conducted within a highly politicised "hotbed" of competing paradigms and principles. New researchers, who want to work within the social model, are soon faced with complex and challenging methodological and philosophical dilemmas. The social model advocates research agendas that are focused on the emancipation and…
Descriptors: Research Methodology, Researchers, Disabilities, Research