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Direct linkLeadbitter, Kathy; Aldred, Catherine; McConachie, Helen; Le Couteur, Ann; Kapadia, Dharmi; Charman, Tony; Macdonald, Wendy; Salomone, Erica; Emsley, Richard; Green, Jonathan; Barrett, Barbara; Barron, Sam; Beggs, Karen; Blazey, Laura; Bourne, Katy; Byford, Sarah; Cole-Fletcher, Rachel; Collino, Julia; Colmer, Ruth; Cutress, Anna; Gammer, Isobel; Harrop, Clare; Houghton, Tori; Howlin, Pat; Hudry, Kristelle; Leach, Sue; Maxwell, Jessica; Parr, Jeremy; Pickles, Andrew; Randles, Sarah; Slonims, Vicky; Taylor, Carol; Temple, Kathryn; Tobin, Hannah; Vamvakas, George; White, Lydia – Journal of Autism and Developmental Disorders, 2018
There is a lack of measures that reflect the intervention priorities of parents of children with autism spectrum disorder (ASD) and that assess the impact of interventions on family experience and quality of life. The Autism Family Experience Questionnaire (AFEQ) was developed through focus groups and online consultation with parents, and…
Descriptors: Pervasive Developmental Disorders, Autism, Questionnaires, Quality of Life
Fitzpatrick, Madeleine; McCrudden, Eunan; Kirby, Karen – Child Care in Practice, 2019
Purpose: Research is only beginning to address the extent to which evidence-based parenting programmes have utility and merit within populations of children and families with neurodevelopmental disorders (NDD). The purpose of this paper is to evaluate a parent-focused intervention for families who have a child with a NDD and investigate whether…
Descriptors: Child Rearing, Parents, Children, Neurological Impairments
Sakiz, Halis; Sart, Zeynep Hande; Börkan, Bengü; Korkmaz, Baris; Babür, Nalan – Learning Disabilities Research & Practice, 2015
This study aimed to explore how children with learning disabilities (LD) perceive their quality of life (QoL) and to compare self-reports and proxy reports regarding their QoL. Children with LD, their typically developing peers, their parents and teachers responded to the child, parent, and teacher forms of KINDL® Questionnaire for Measuring…
Descriptors: Learning Disabilities, Quality of Life, Self Concept, Comparative Analysis
Timmons, Lisa; Willis, Kelcie D.; Pruitt, Megan M.; Ekas, Naomi V. – Journal of Autism and Developmental Disorders, 2016
Mothers of children with autism spectrum disorder (n = 70) completed online measures of global constructs (i.e., stable individual characteristics measured at time 1), which included resilience, depressive symptoms, and family functioning, followed by 14 daily questionnaires assessing relationship quality and affect on a given day. The global…
Descriptors: Predictor Variables, Pervasive Developmental Disorders, Mothers, Online Surveys
Dardas, Latefa A.; Ahmad, Muayyad M. – Journal of Autism and Developmental Disorders, 2014
The World Health Organization's Quality of Life Questionnaire-BREF (WHOQOL-BREF) has been used in many studies that target parents of children with Autistic Disorder. However, the measure has yet to be validated and adapted to this sample group whose daily experiences are considered substantially different from those of parents of children…
Descriptors: Quality of Life, Questionnaires, Parents, Autism
Markowitz, Leslie A.; Reyes, Charina; Embacher, Rebecca A.; Speer, Leslie L.; Roizen, Nancy; Frazier, Thomas W. – Autism: The International Journal of Research and Practice, 2016
This study investigated the psychometric properties of the Child and Family Quality of Life scale, a measure of psychosocial quality of life in those with autism and related developmental disorders. Parents of 212 children suspected of autism spectrum disorder completed the Child and Family Quality of Life prior to a diagnostic evaluation. Results…
Descriptors: Psychometrics, Quality of Life, Autism, Pervasive Developmental Disorders
Golubovic, Spela; Skrbic, Renata – Research in Developmental Disabilities: A Multidisciplinary Journal, 2013
Intellectual disability affects different aspects of functioning and quality of life, as well as the ability to independently assess the quality of life itself. The paper examines the agreement in the quality of life assessments made by adolescents with intellectual disability and their parents compared with assessments made by adolescents without…
Descriptors: Adolescents, Quality of Life, Measures (Individuals), Physical Health
McStay, Rebecca L.; Trembath, David; Dissanayake, Cheryl – Journal of Autism and Developmental Disorders, 2014
Past research has supported the utility of the Double ABCX model of family adaptation for parents raising a child with autism spectrum disorder (ASD). What remains unclear is the impact of family-related variables on outcomes in both mothers and fathers within the same family. We explored the potential predictors of maternal and paternal stress…
Descriptors: Stress Variables, Quality of Life, Family Environment, Parents
El-Dardiry, Giulia; Dimitrakaki, Christine; Tzavara, Chara; Ravens-Sieberer, Ulrike; Tountas, Yannis – Social Indicators Research, 2012
In this paper, we examined dimensions of child health-related quality of life in Greece in relation to parental assessments of neighbourhood social capital and social support networks. For the analysis, two main measures were used: (1) child self-reported health-related quality of life in ten dimensions, as measured by the KIDSCREEN questionnaire;…
Descriptors: Neighborhoods, Questionnaires, Parent Attitudes, Correlation
Khanna, Rahul; Madhavan, S. Suresh; Smith, Michael J.; Tworek, Cindy; Patrick, Julie H.; Becker-Cottrill, Barbara – Autism: The International Journal of Research and Practice, 2012
The purpose of this study was to test the psychometric properties of the Caregiver Strain Questionnaire (CGSQ) among caregivers of children with autism. The CGSQ was originally developed to assess burden experienced by parents of children and adolescents with serious emotional and behavioral disorders. Study data was collected from 304 primary…
Descriptors: Autism, Quality of Life, Caregivers, Test Validity
Yoong, A.; Koritsas, S. – Journal of Intellectual Disability Research, 2012
Background: Because of an increase in life expectancy and de-institutionalisation, many adults with intellectual disability (ID) live with and are cared for by their parents throughout their adult lives. Because of caring demands, the quality of life (QOL) of parents may be affected. The study explored the impact of caring for an adult with ID on…
Descriptors: Mental Retardation, Quality of Life, Questionnaires, Employment Opportunities
Bertelli, M.; Bianco, A.; Rossi, M.; Scuticchio, D.; Brown, I. – Journal of Intellectual Disability Research, 2011
Background: There is substantial literature investigating quality of life (QoL) of individuals with intellectual disability (ID). QoL of families of people with ID is emerging as an important field of research. Despite this, there is a lack of studies regarding their relationship. Aim: The present paper aimed to study the relationship between QoL…
Descriptors: Mental Retardation, Family Programs, Quality of Life, Questionnaires
Smith, Kelsey E.; Patterson, Chavis A.; Szabo, Margo M.; Tarazi, Reem A.; Barakat, Lamia P. – Advances in School Mental Health Promotion, 2013
Children with sickle cell disease (SCD) are at risk for neurocognitive impairment and poor academic achievement, although there is limited research on factors predicting academic achievement in this population. This study explores the relative contribution to academic achievement of a comprehensive set of factors, such as environmental…
Descriptors: Genetic Disorders, Children, Academic Achievement, Predictor Variables
Danhauer, Jeffrey L.; Johnson, Carole E.; Caudle, Abby T. – Language, Speech, and Hearing Services in Schools, 2011
Purpose: Ear infections are prevalent in kindergarten through 3rd-grade (K-3rd) children and can affect their performance at school. Chewing gum, when administered by parents and teachers, can help prevent ear infections in children. This pilot study surveyed K-3rd-grade teachers in the Santa Barbara School Districts to assess their knowledge…
Descriptors: Prevention, Quality of Life, Diseases, Human Body
Anilan, Burcu – Asia-Pacific Forum on Science Learning and Teaching, 2014
This descriptive research was conducted to determine the levels of environmental risk perceptions and environmental awareness of high school students in Eskisehir. High school students in the towns Tepebasi and Odunpazari in the 2010-2011 school years constitute the universe of the research. The sample of the research is composed of 413 high…
Descriptors: High School Students, Risk, Student Attitudes, Knowledge Level
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