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Direct linkGómez, Laura E.; Morán, M. Lucía; Alcedo, M. Ángeles; Arias, Víctor B.; Verdugo, Miguel-Ángel – Intellectual and Developmental Disabilities, 2020
Despite the advances on the assessment of quality of life, this concept is barely studied and is riddled with important limitations for those with autism spectrum disorder (ASD). This article is aimed at validating a questionnaire to assess quality of life of children with ASD and intellectual disability (ID). Based on the KidsLife Scale, geared…
Descriptors: Quality of Life, Children, Adolescents, Autism
Cuesta Gómez, José Luis; Anuncibay, Raquel de la Fuente; González Bernal, Jerónimo; García Coto, Miguel Angel – International Journal of Developmental Disabilities, 2019
Objective: The evaluation of individual and organizational quality of life through the Guide to Quality-of-Life Indicators and its promotion in English-speaking areas. This guide was initially designed for people living with Autism Spectrum Disorder in specialist autism centers in Spanish and Italian-speaking areas where its effectiveness has been…
Descriptors: Quality of Life, Autism, Pervasive Developmental Disorders, Questionnaires
Hatta, Kyoko; Hosozawa, Mariko; Tanaka, Kyoko; Shimizu, Toshiaki – Journal of Autism and Developmental Disorders, 2019
Subclinical traits of autism were measured in children with somatic symptom disorder (SSD, n = 28) and compared with age-matched controls (n = 26) using the Autism Spectrum Quotient (AQ) children's version. The KINDL[superscript R] quality of life questionnaire was used to assess functional disability. Although there was no significant group…
Descriptors: Autism, Pervasive Developmental Disorders, Disabilities, Children
Leadbitter, Kathy; Aldred, Catherine; McConachie, Helen; Le Couteur, Ann; Kapadia, Dharmi; Charman, Tony; Macdonald, Wendy; Salomone, Erica; Emsley, Richard; Green, Jonathan; Barrett, Barbara; Barron, Sam; Beggs, Karen; Blazey, Laura; Bourne, Katy; Byford, Sarah; Cole-Fletcher, Rachel; Collino, Julia; Colmer, Ruth; Cutress, Anna; Gammer, Isobel; Harrop, Clare; Houghton, Tori; Howlin, Pat; Hudry, Kristelle; Leach, Sue; Maxwell, Jessica; Parr, Jeremy; Pickles, Andrew; Randles, Sarah; Slonims, Vicky; Taylor, Carol; Temple, Kathryn; Tobin, Hannah; Vamvakas, George; White, Lydia – Journal of Autism and Developmental Disorders, 2018
There is a lack of measures that reflect the intervention priorities of parents of children with autism spectrum disorder (ASD) and that assess the impact of interventions on family experience and quality of life. The Autism Family Experience Questionnaire (AFEQ) was developed through focus groups and online consultation with parents, and…
Descriptors: Pervasive Developmental Disorders, Autism, Questionnaires, Quality of Life
Shamsudin, Iylia Dayana; Yu, Mong-Lin; Brown, Ted – Journal of Occupational Therapy, Schools & Early Intervention, 2019
Parents of children with autism spectrum disorder (ASD) often experience a lower quality of life, which impacts on their children's care, functioning and outcome and requires assessment and monitoring. Malaysia is a country presenting with an increasing prevalence of ASD and needs a linguistically and culturally appropriate quality of life…
Descriptors: Translation, Indonesian Languages, Cultural Differences, Validity
Reed, Phil; Sejunaite, Karolina; Osborne, Lisa A. – Journal of Autism and Developmental Disorders, 2016
The current study explore the relationship between various forms of experienced stress (general stress and parenting stress) and both health-related quality of life (QoL) and reported physical health symptoms. One hundred and twenty-two mothers of children with autism spectrum disorder responded to an online survey included questionnaires on…
Descriptors: Autism, Pervasive Developmental Disorders, Mothers, Stress Variables
Moss, Philippa; Mandy, William; Howlin, Patricia – Journal of Autism and Developmental Disorders, 2017
The WHO Quality of Life-Brief questionnaire was used to assess quality of life (QoL) among 52 adults with autism (mean age 49 years) followed-up since childhood. Overall, assessments of QOL were more positive than measures of objective social outcome (jobs, independence, relationships etc.) but correlations between caregiver and self-reports were…
Descriptors: Quality of Life, Autism, Pervasive Developmental Disorders, Questionnaires
de Vries, Marieke; Verdam, Mathilde G. E.; Prins, Pier J. M.; Schmand, Ben A.; Geurts, Hilde M. – Autism: The International Journal of Research and Practice, 2018
Previously, a total of 121 children with an autism spectrum disorder (ASD) performed an adaptive working memory (WM)-training, an adaptive flexibility-training, or a non-adaptive control (mock)-training. Despite overall improvement, there were minor differences between the adaptive and mock-training conditions. Moreover, dropout was relatively…
Descriptors: Autism, Pervasive Developmental Disorders, Short Term Memory, Training
Timmons, Lisa; Willis, Kelcie D.; Pruitt, Megan M.; Ekas, Naomi V. – Journal of Autism and Developmental Disorders, 2016
Mothers of children with autism spectrum disorder (n = 70) completed online measures of global constructs (i.e., stable individual characteristics measured at time 1), which included resilience, depressive symptoms, and family functioning, followed by 14 daily questionnaires assessing relationship quality and affect on a given day. The global…
Descriptors: Predictor Variables, Pervasive Developmental Disorders, Mothers, Online Surveys
Dijkhuis, Renee R.; Ziermans, Tim B.; Van Rijn, Sophie; Staal, Wouter G.; Swaab, Hanna – Autism: The International Journal of Research and Practice, 2017
Background: Autism is generally associated with poor functional outcome but little is known about predictors of quality of life, especially during early adulthood. This study was conducted to assess subjective quality of life during early adulthood in high-functioning autism spectrum disorder and its relation with self-regulating abilities.…
Descriptors: Autism, Quality of Life, Pervasive Developmental Disorders, Executive Function
Gray, Kathleen O. – ProQuest LLC, 2016
The purpose of this study was to explore the perceptions of typically developing siblings of individuals with autism spectrum disorders regarding their own quality of life. The researcher also sought to discover if there were specific characteristics that affected the typically developing siblings' descriptions of their lives. In order to achieve…
Descriptors: Quality of Life, Pervasive Developmental Disorders, Autism, Siblings
Herrema, Renske; Garland, Deborah; Osborne, Malcolm; Freeston, Mark; Honey, Emma; Rodgers, Jacqui – Journal of Autism and Developmental Disorders, 2017
Family members are often the primary caregiver for autistic adults and this responsibility may impact on the carer's wellbeing and quality of life. 109 family members of autistic adults completed an online survey assessing their wellbeing relating to their caring role for their autistic relative. Family members who were supporting an autistic…
Descriptors: Well Being, Mental Health, Family Environment, Adults
Dardas, Latefa A.; Ahmad, Muayyad M. – Journal of Autism and Developmental Disorders, 2014
The World Health Organization's Quality of Life Questionnaire-BREF (WHOQOL-BREF) has been used in many studies that target parents of children with Autistic Disorder. However, the measure has yet to be validated and adapted to this sample group whose daily experiences are considered substantially different from those of parents of children…
Descriptors: Quality of Life, Questionnaires, Parents, Autism
Viecili, Michelle A.; Weiss, Jonathan A. – American Journal on Intellectual and Developmental Disabilities, 2015
The Pediatric Quality of Life Inventory (PedsQL) measures health-related quality of life, a growing area of research, particularly among individuals with disabilities. This research is necessary to fully understand the varied needs of the population and, ultimately, ensure that those needs are being met. The current study assessed the reliability…
Descriptors: Mental Retardation, Developmental Disabilities, Children, Quality of Life
Markowitz, Leslie A.; Reyes, Charina; Embacher, Rebecca A.; Speer, Leslie L.; Roizen, Nancy; Frazier, Thomas W. – Autism: The International Journal of Research and Practice, 2016
This study investigated the psychometric properties of the Child and Family Quality of Life scale, a measure of psychosocial quality of life in those with autism and related developmental disorders. Parents of 212 children suspected of autism spectrum disorder completed the Child and Family Quality of Life prior to a diagnostic evaluation. Results…
Descriptors: Psychometrics, Quality of Life, Autism, Pervasive Developmental Disorders
