Vacations allow the mind and body to recharge from stress and fatigue; and it's nice to escape everyday busyness. Children need vacation time too: school can be hard work! Vacation is a great time to enjoy good food, fun, and bonding, whether it takes one to the beach, an amusement park, camping, or cruising rivers, lakes, and oceans. This article…

The excitement of going on a family vacation can be matched only by the stress parents experience as they prepare for the excursion. Parents of children with disabilities have special considerations to keep in mind, including the mode of transportation, the accessibility of accommodations, whether the activities will be appropriate for all members…

Estate planners counseling families who have children with disabilities are increasingly confronted with planning dilemmas that mirror the social, financial, and societal issues presented by an aging population. It is not uncommon when discussing "special needs" planning with clients to discover that they are in their 70s or 80s and…

When it comes to making the right choices for children with disabilities, families are the experts. To prove this point, the Hatton Project sponsored a grant wherein researchers interviewed members of 12 families of children with disabilities on factors that caused them to identify themselves as "successful." The results yielded eight lessons…

The goal of parenthood is to raise children to be productive community members who are self-determined. Adults who have freedom over how they want to live their life, spend their money and live in a way that enhances and confirms their importance are self-determined. Overall affection in the family will enhance self-esteem and help children grow…

This article presents part 2 of the series on emergency preparedness. Here, the author offers suggestions that exceptional families can use to prepare for emergencies. While the circumstances--terrorist events, disease epidemics, natural disasters--may vary, emergency preparedness experts agree on one thing: It is important for families,…

With the increase in the numbers of diagnosed children on the autism spectrum, schools are being challenged to provide proper educational services for these children. In Educating Children with Autism, the National Research Council recommended that educational programs for students with autism include three basic components. These are direct…

Families are often taken by complete surprise when they learn that they have or will have a child with special healthcare needs. Such occurrences, for the most part, are neither preventable nor expected. Immediately, the family is faced with major changes in their lives, their finances, and the long-term expectations of their child. In this…

Three million Americans have epilepsy, a chronic neurological condition characterized by recurrent epileptic seizures unprovoked by any known cause. Those at risk for epilepsy include individuals with mental retardation, cerebral palsy, autism, stroke, major head trauma, central nervous system (CNS) hemorrhage, CNS infection, dementia, and brain…

This article presents the fifth part in the 12 installment Medical Home series that presents the experiences of a fictitious couple, Amita and Samir, as they learn to adapt to the reality of having a premature baby with special needs. It describes how Amita and Samir begin preparation for their daughter Anjali's enrollment in kindergarten. "EP"…

The key to a well-written, well-reasoned Individualized Education Program (IEP) is clearly identifying and writing measurable goals and objectives. The single most important part of that process is identifying and understanding a student's needs. This essential first step is the best way to prepare for the search that will produce the most…

Parents of children with a serious disability often face monumental challenges. They can end up feeling isolated, angry, and overwhelmed. This article describes The Parent Leadership Development (PLD) Project, a pioneering program spearheaded by the Parent to Parent of Miami and funded by The Children's Trust. The 11 parents participating in this…

The parent of a severely handicapped child encourages parents to prepare written care plans when leaving a child with others for a respite period. (DB)

In December of 2004, the reauthorization of IDEA (Individuals with Disabilities Education Act) was signed into law and went into effect on July 1, 2005, making dramatic changes in the area of transition from school to post-secondary life. The President's Commission on Excellence in Special Education created recommendations that influenced the new…

Despite the transition requirements of Individuals with Disabilities Education Act (IDEA) and a growing body of research in support of effective transition planning for learners with an autism spectrum disorder (ASD), many adults on the spectrum remain without employment in large numbers. Even for those generally regarded as most capable, they…