Self-reported health status is an integral method to understand how adults on the autism spectrum perceive their healthcare and service needs. The objective of the study is to examine how self-reported health changes with use and need of physical health services. The Pennsylvania autism needs assessment included a survey of adults on the autism…

Health care continuity during the transition from pediatric to adult care is critical to helping individuals with autism spectrum disorders manage complex medical and psychiatric co-morbidities that start in childhood and evolve with age. We conducted a brief online survey of pediatric and adult providers at Kaiser Permanente Northern California,…

Life expectancy of adults with intellectual disabilities is lengthening toward that of adults without intellectual disabilities, but daily practice indicates that this aging is relatively often not a healthy aging compared with the general population. There is a lack of a concerted response to ensure that the best possible health and social care…

This "2018-2019 Interagency Autism Coordinating Committee (IACC) Strategic Plan Update" is the work of the IACC membership that was appointed under the Autism CARES Act of 2014. The Committee agreed that the "2016-2017 IACC Strategic Plan" reflected a comprehensive review of the state of the field and provided a set of 23 new…

There is a growing body of research on the construct of support needs in individuals with intellectual disability (ID). An increasing emphasis is being placed on measuring and understanding the needs for supports and the factors that drive the intensity of these support needs. Prior research has firmly established that individuals with ID are more…

This article presents the authors' response to the invited commentaries on their paper (Wallace and Beange, 2008). On the point of "specialism", the authors emphasise a fundamental premise of their argument: the proposed "specialist" hospital-based service is inherently enmeshed within generic services at the hospital level,…

This commentary discusses whether a sufficient case has been made for specialism in hospital services as a viable alternative to existing generic services. The impact of developments in specialist care such as those outlined by Robyn A. Wallace and Helen Beange should be assessed as a means of reducing inequality. In particular, model services…

In this article, the author comments on the paper "On the need for a specialist service within the generic hospital setting" (Wallace & Beange, 2008), which raises critical issues regarding effective models of healthcare delivery for individuals with intellectual disability (ID), particularly within a hospital setting (but not…

Although the presence of intellectual disability (ID) per se is not usually regarded as a health problem, the biopsychosocial implications of cognitive impairment contribute to the vulnerability of adult patients with ID in any healthcare system. The adult patient with ID differs from a patient in the general population in terms of health…

The health status of people with intellectual disability (ID) is poor, yet very little research has been done on their health needs. There are several barriers to performing this research. The aim of our research was to examine the significant barriers encountered in recruiting adults with ID to participate in research. Our project was a…

In July and August 1975, face-to-face interviews were conducted with 347 adults living in Indiana County, Pennsylvania to gather information on the health services needed, physician extenders (i.e., nurse practitioners and physician's assistants), adequate health care for everyone, and regular health habits of the population. The sample included…

Focusing on heart disease and cancer, the study compared the preventive health education needs of farm and nonfarm rural adults. During July and August 1975, face-to-face interviews were conducted with 57 men and 161 women living in Armstrong and Butler Counties, Pennsylvania. The sample included 119 commercial farm households and 99 rural nonfarm…

This compilation brings together various conference papers and a working group report on health and psychosocial aspects of transition for people with deaf-blindness and other profound disabilities. The title paper by Sharon Hostler focuses on health service needs of the individual, including health planning, a transition health assessment, and an…

The purpose of the conference summarized here was to provide a multidisciplinary examination of the critical service needs of youth who are profoundly/multiply handicapped with deaf-blindness and who are old enough to be leaving the education system, and to recommend strategies for providing high quality comprehensive transition services for the…