This article discusses a participatory action research (PAR) team's response and adaptation to the COVID-19 pandemic amid multiple crises in Puerto Rico. Drawing on an ethnographic study of a PAR collaboration, the article: 1) examines four key dilemmas that emerged during the study, 2) emphasizes the significance of reciprocal partnerships…

Autism science faces several conceptual and ethical challenges. These include fundamental issues such as how to characterize autism and the fact that research findings and how they are interpreted sometimes contribute to negative perceptions of autistic people. We argue that some of these challenges can be addressed by centering the perspectives…

For caregivers of people living with major neurocognitive disorders (MNCD), adapting and applying methods optimizing learning (MOL) to a specific situation, based on preserved cognitive skills, can be challenging. This study aimed to 1) co-develop workshops, a web application and accompanying materials to support the operationalization of MOL; 2)…

Background: This paper describes the experience of conducting a co-researched project with people with learning disabilities in Madrid, Spain, during the COVID pandemic and lockdown. I discuss the advantages and limitations of working online and challenges encountered while coordinating and facilitating the research. Methods: Our research project…

Background: This study is inclusive research. Inclusive research is when people with disability are involved as researchers. The aim of this project was to focus on relationships that people with intellectual disability have and to find what makes these relationships work. Another aim of this project was to share stories about these relationships…

The primary goal of this research is to examine New York State's humane education mandate, Section 809 of the Education Law; specifically, its history, barriers, and possible implementation solutions to achieve statewide elementary school compliance. It explores the educational system and its role in school compliance with the mandate. In…

"Practical Research" is an engaging, cross-disciplinary guide to research methodology. This text is your do-it-yourself, how-to manual for planning and conducting research. Suitable for a wide variety of courses in basic research methodology, the book uses a conversational tone, step-by-step instructions, and practical suggestions to…

The purpose of this paper is to utilize systematic review methodology to describe how Latinx youth engage in youth participatory action research (YPAR) in the secondary school context. Of the 961 articles in the database search, 13 studies were included in the final sample. I analyzed the studies thematically and coded for YPAR characteristics and…

The importance of participatory autism research is discussed in relation to a project involving six autistic researchers and five non-autistic university researchers collaborating to investigate anxiety in autistic adolescents. The paper describes the process of establishing a research partnership and the values and philosophy behind this…

Participatory Action Research (PAR) brings unique ethical challenges. Scholars have developed seven ethical principles to address these challenges. So far, little has been published on how these ethical principles (are put to) work in different fields. We used the principles to evaluate our collaboration with co-researchers with developmental…

This paper explores the prospects of combining Grounded Theory (GT) and Action Research (AR) methodologies to spark further methodological discussion. GT and AR methodologies are sometimes used together in the same study without a discussion of their methodological compatibility. However, different iterations of GT and various forms of AR may…

In this study, we used online photovoice and community-based participatory research to understand and address facilitators and barriers to online distance education for college students in Turkey. Out of 260 students who consented to the study, 240 shared the most important facilitator, 190 shared the most important barriers, and 190 completed our…

Though community-based participatory research (CBPR) boasts a robust history, challenges to conducting such work ethically and equitably remain. Common difficulties, such as addressing power dynamics and navigating mutuality, are heightened when doing participatory research with young people, specifically youth participatory action research…

This paper reports on a two-year project focusing on health communicators working with refugees in Sweden. By employing participatory action research and the theory of practice architectures, the study examines a health information practice for newly arrived refugees and highlights its potentials and constraints. The joint meetings that occurred…

Despite more autism research taking place than ever before, there is a disconnect between the current landscape of autism research and what autistic people and their allies want from research. While participatory research has been proposed as a potential solution, we know little about how researchers (particularly, early career researchers) employ…