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''Ethno…Graphy?!? I Can't Even Say It": Co-Designing Training for Ethnographic Research for People with Learning Disabilities and Carers
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Mikulak, Magdalena; Ryan, Sara; Bebbington, Pam; Bennett, Samantha; Carter, Jenny; Davidson, Lisa; Liddell, Kathy; Vaid, Angeli; Albury, Charlotte – British Journal of Learning Disabilities, 2022
Background: There is a strong ethical case and an urgent need for more participatory research practices in disability research but a lack of resources to support this. It is important to involve people with learning disabilities and carers at all stages, including when designing training for co-research. Methods: We co-developed training materials…
Descriptors: Participatory Research, Ethnography, Learning Disabilities, Research Methodology
Antonia's Story: Bringing the Past into the Future
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Barden, Owen; Walden, Steven J.; Bennett, Davey; Bird, Nicole; Cairns, Stella; Currie, Rhiannon; Evans, Lynne; Jackson, Stephen; Oldnall, Emily; Oldnall, Sarah; Price, Dawn; Robinson, Tricia; Tahir, Amber; Taylor, Samantha; Wright, Christine; Wright, Claire – British Journal of Learning Disabilities, 2022
Background: This paper reports on a participatory project on the history of learning disability. The paper makes contributions to discourses on using participatory research methods with people labelled with learning disabilities, on the nature of research impact in participatory research, and on the lived experience of learning disability today.…
Descriptors: Learning Disabilities, Educational History, Participatory Research, Student Experience
"Please Send Me the Link for Tomorrow, María" Human-Rights Based Participatory Research with People with Learning Disabilities via Zoom
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Castro, María Gómez-Carrillo; Palazuelos, Adela; Corona, Adrián; Sánchez, Ángela; Alises, Gema; Sancho, Marta; Cauja, Paola; Sanz, Víctor – British Journal of Learning Disabilities, 2023
Background: This paper describes the experience of conducting a co-researched project with people with learning disabilities in Madrid, Spain, during the COVID pandemic and lockdown. I discuss the advantages and limitations of working online and challenges encountered while coordinating and facilitating the research. Methods: Our research project…
Descriptors: Participatory Research, Learning Disabilities, Videoconferencing, Foreign Countries
The Two of Us Project: An Exploration of the Relationships of People with Intellectual Disability in Different Social Contexts
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Kelly, Jack; Wagstaff, Seren – British Journal of Learning Disabilities, 2022
Background: This study is inclusive research. Inclusive research is when people with disability are involved as researchers. The aim of this project was to focus on relationships that people with intellectual disability have and to find what makes these relationships work. Another aim of this project was to share stories about these relationships…
Descriptors: Inclusion, Participatory Research, Intellectual Disability, Interpersonal Relationship
Adapting Photovoice to Explore Identity Expression amongst People with Intellectual Disabilities Who Have Limited or No Verbal Communication
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Krisson, Emma; Qureshi, Maria; Head, Annabel – British Journal of Learning Disabilities, 2022
Background: Inclusive research requires adapting methodologies to meet the needs of people with all degrees of intellectual disabilities. However, it must also balance this with the requirements of academic research. Building from previous research a study was completed to illustrate how photovoice could not only be adapted to meet the needs of…
Descriptors: Photography, Audio Equipment, Participatory Research, Identification (Psychology)
Co-Producing Ethics Guidelines Together with People with Learning Disabilities
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Mary Bottomley; Jodie Bradley; Lisa Clark; Bryan Collis; Bojana Daw Srdanovic; Victoria Farnsworth; Annie Ferguson; Dan Goodley; Andrew Fox; Nikita K. Hayden; Charlotte Lawthom; Rebecca Lawthom; Claudia Magwood; Robert McLean; Ian Middleton; Alison Owen; Matty Prothero; Simon Rice; Simon Richards; Katherine Runswick-Cole; Kelly Scargill; Rohit Shankar; Toni Ann Wood – British Journal of Learning Disabilities, 2024
Background: We are a research team of clinical, academic and advocacy-based researchers with and without learning disabilities, working on the "Humanising Healthcare" (for people with learning disabilities) project. The project is dedicated to finding and sharing healthcare practices that enhance the lives of people with learning…
Descriptors: Ethics, Learning Disabilities, Guidelines, Researchers
Working It out Together: Lessons and Insights into Inclusive Research in an Arts Context
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Matthew Reason; Kelsie Acton; Daniel Foulds – British Journal of Learning Disabilities, 2024
Background: "I'm Me" is a creative research project co-created between York St John University and Mind the Gap, investigating learning disabled and autistic artists' understandings of identity, representation and voice. Methods: In this paper, we use Walmsley and Johnson's criteria for inclusive research to reflect on the involvement of…
Descriptors: Artists, Partnerships in Education, Learning Disabilities, Autism Spectrum Disorders
Big Ideas That Changed the World of Disability: Exploring Theory with Self-Advocates
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Nicola Grove; Simon Richards; Simon Rice; Claudia Magwood; Bryan Collis; Steffen Martick; Saskia Schuppener; Gertraud Kremsner; Elizabeth Tilley; Jan Walmsley – British Journal of Learning Disabilities, 2024
Background: Inclusive research has sidelined discussion of theoretical issues with researchers with intellectual/learning disabilities. This is a situation which the Big Ideas initiative sought to change. Between 2021 and 2023, the Open University, Leipzig University and the University of Koblenz organised nine workshops to explore influential…
Descriptors: Electronic Learning, Workshops, Inclusion, Learning Disabilities
People with Learning Disabilities and Access to Mainstream Arts and Culture: A Participatory Action Research Approach
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Gratton, Nicola – British Journal of Learning Disabilities, 2020
Background: Arts and culture have proven benefits. However, access to arts and culture is not consistent. For people with learning disabilities, arts and culture are often considered therapeutic activities, and therefore, the needs of people with learning disabilities in accessing mainstream arts and culture are often overlooked. This research…
Descriptors: Learning Disabilities, Art Activities, Cultural Activities, Barriers
Supporting Positive Sexual Health for Persons with Developmental Disabilities: Stories about the Right to Love
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Sitter, Kathleen C.; Burke, Amy C.; Ladhani, Sheliza; Mallay, Nicole – British Journal of Learning Disabilities, 2019
Background: Although sexual rights are human rights, persons with developmental disabilities are often excluded from developing positive sexual health due to societal attitudes, stigma, a lack of education and limited opportunities. Methods: As a part of a 12-month participatory action research study in a western Canadian province, nine adults…
Descriptors: Sexuality, Participatory Research, Action Research, Video Technology
Deciding What to Research: An Overview of a Participatory Workshop
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Northway, Ruth; Hurley, Karen; O'Connor, Chris; Thomas, Helen; Howarth, Joyce; Langley, Emma; Bale, Sue – British Journal of Learning Disabilities, 2014
While recent years have seen an increase in the number of participatory and inclusive research studies being undertaken where people with learning disabilities are active members of the research team, little has been published about how teams decide what to research. This paper aims to fill this gap by discussing how in one area of Wales a…
Descriptors: Foreign Countries, Participatory Research, Educational Research, Developmental Disabilities
A Search for Meaning: Telling Your Life with Learning Disabilities
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Horn, Jaime Helena; Moss, Duncan – British Journal of Learning Disabilities, 2015
Research has identified the collective experiences of oppression, stigma and isolation in the lives of people with learning disabilities. Against the backdrop of social and cultural processes that shape and limit the life experiences of people with learning disabilities, the authors are interested in how the individual develops a sense of self and…
Descriptors: Experience, Individual Development, Females, Personal Narratives
Having Friends--They Help You when You Are Stuck from Money, Friends and Making Ends Meet Research Group
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British Journal of Learning Disabilities, 2012
This article is about the lived experiences and friendships of a small group of people with a learning disability who live without support in one of the most deprived areas in the UK. The findings are from an inclusive research project, that was named "Money, Friends and Making Ends Meet" and the participants who researched their own…
Descriptors: Learning Disabilities, Social Networks, Friendship, Social Capital
Mutual Support: A Model of Participatory Support by and for People with Learning Difficulties
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Keyes, Sarah E.; Brandon, Toby – British Journal of Learning Disabilities, 2012
Mutual Support, a model of peer support by and for people with learning difficulties, was constructed through a participatory research process. The research focussed on individual narratives from people with learning difficulties. These narratives were then brought together to form a collective model of support. This paper outlines the detailed…
Descriptors: Learning Problems, Participatory Research, Self Advocacy, Personal Narratives
Parents as Co-Researchers: A Participatory Action Research Initiative Involving Parents of People with Intellectual Disabilities in Ireland
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Walmsley, Jan; Mannan, Hasheem – British Journal of Learning Disabilities, 2009
This paper evaluates a participatory action research (PAR) approach to conducting family research in Ireland. Drawing on PAR methodology it describes how parents of people with intellectual disabilities were recruited and trained to facilitate focus groups of parents in Ireland, in order to create an evidence base to support improved dialogue…
Descriptors: Action Research, Mental Retardation, Family Life, Focus Groups
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