Purpose: Increasing demand for autism services is straining service systems. Tailoring services to best meet families' needs could improve their quality of life and decrease burden on the system. We explored overall, best, and worst met service needs, and predictors of those needs, for families of children with autism spectrum disorders. Methods:…

A respite care needs assessment survey was completed by 574 Iowa families of children with developmental disabilities. Results documented a void in the availability and accessibility of respite services regardless of demography, income level, or extent of disability. Respondents generally perceived that the availability of respite care service…

This guide, based on a qualitative research study which identified primary stressors in families of children with traumatic brain injury (TBI), presents: (1) a summary of the needs of families affected by TBI; and (2) a proposed theoretical intervention model to meet those needs. The first section attempts to describe the present system of…

In focus group interviews, 39 parents of children (ages birth to 21 years) with developmental disabilities, emotional disorders, and technology-supported needs shared their perspectives regarding special needs, crisis situations, and parent/professional relationships. The purpose of the study was to determine what is necessary to keep children…

Two surveys, one qualitative and one quantitative, were conducted of the opinions and experiences of New York State parents of children with learning delays and disabilities regarding parental labor force participation, child care options, and preferences in state policies. A total of 141 parents responded to the quantitative survey and 210 to the…