Caregiver coaching is an evidence-based practice for autistic children that is poorly implemented in community-based early intervention. Previous studies have identified factors that influence implementation of caregiver coaching in early intervention; however, multi-informant (e.g., caregiver, provider, leadership) qualitative research is…

Caregiver coaching is an evidence-based practice for young autistic children, but it is not widely used in community-based early intervention services. Previous research has explored why caregiver coaching is not widespread in early intervention, but only from the perspective of early intervention providers. Caregivers, providers, and…

Understanding caregivers' needs is crucial for service planning and empowering caregivers around the world. Although research on autism from Arab countries is emerging, many countries are still unrepresented. Moreover, within-country disparities are understudied. This study investigated differences in needs, service use, and satisfaction between…

Embracing parental advocacy is pivotal in navigating the challenges associated with autism spectrum disorder (ASD). Such challenges include stress, stigmas, educational challenges, and access to support and services. This study's purpose was to examine parents' and adult primary caregivers' perspectives when advocating for an individual with ASD.…

Tourette Syndrome (TS) is a neurological disorder estimated to affect around 1% of children worldwide. Although advances in pharmacological and behavioural treatments appear promising, there is a paucity of research, especially in New Zealand, where little is known about parents' and caregivers' attitudes and experiences. The current study aimed…

Caregiver engagement has been a topic of study due to the resulting benefits regarding student's school experience. Students are better prepared to transition to kindergarten, receive higher test scores, increase attendance, and report fewer discipline problems when caregivers work collaboratively with school personnel. This study addresses…

This research aims to analyse the barriers and facilitators to enrolling a toddler in inclusive day care facilities. Data were gathered from ten (N = 10) childcare providers who work in inclusive day care centres in Paris, France. Semi-structured interviews were conducted and analysed using the thematic analysis (Braun and Clarke in Qual Res…

Many people with intellectual disabilities (ID) depend on caregivers for pain identification and pain management decisions. Therefore, the aim was to explore caregivers' experience with pain in Prader-Willi syndrome (PWS), Williams syndrome (WS), and Fragile-X syndrome (FXS). A questionnaire was developed to gather third-party reporting of mainly…

Although the families of adolescents with ADHD are at risk of various adverse outcomes, many experience resilience processes that support the adolescent and family members to thrive. This qualitative study explored the experience and perspectives of parents and caregivers of young adolescents in Canada with ADHD and professionals who support them…

Background: Bullying is common in school age youth and more frequent for youth living with anxiety. Parents are in a unique position to contextualize and increase understanding of youth experiences. Objective: This study examined parents' perspectives on bullying experiences of youth with anxiety to deepen our understanding of the challenges faced…

Purpose: Understanding the experiences of families of children with developmental language disorder (DLD) during COVID-19 educational disruptions is essential for designing responsive supports during pandemic recovery efforts and beyond. This qualitative study describes the experiences of families of first- and second-grade children with DLD…

Background: This study focused on the level of satisfaction of social participation reported by young adults with intellectual disabilities, and the comparison of these levels to those reported by their caregivers. Methods: Fifteen young adults with intellectual disabilities and their parents/caregivers completed the Patient-Reported Outcomes…

Background: The United States does not have a comprehensive, publicly funded early care and education (ECE) system. As a result, disparities in access and participation in quality ECE in the U.S. are well-documented. Low and middle-income families participate less frequently in ECE compared with higher-income families, often due to conflicts with…

More than 10% of children in Ontario have an additional need that may influence long-term lifestyle patterns, including physical activity (PA). This study sought to assess the status of PA as well as the barriers to and facilitators of PA for families in southwestern Ontario raising children with and without disabilities. Complete survey data were…

We are developing the Equitable Screening to Support Youth (ESSY) Whole Child Screener to address concerns prevalent in existing school-based screenings that impede goals to advance educational equity using universal screeners. Traditional assessment development does not include end users in the early development phases, instead relying on a…