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Knoll, James; Bedford, Sara – Exceptional Parent, 1989
Results of a survey of 2,800 parents of children with disabilities found that families are essentially pleased with their respite services, but are dissatisfied with the services' lack of flexibility, arbitrary limits on use, inability to respond to crises, lack of parental voice in forming or reforming services, etc. (JDD)
Descriptors: Disabilities, Family Programs, Parent Attitudes, Respite Care
Download full textKnoll, James A.; Bedford, Sara – 1989
The project sought to determine the content and form of materials that would enable parents of children with disabilities to become informed critical consumers of respite services. Project activities included establishment and utilization of a national advisory panel; an indepth review of the literature on family supports, systems change, and…
Descriptors: Advocacy, Consumer Education, Disabilities, Information Needs
