Results of a survey of 2,800 parents of children with disabilities found that families are essentially pleased with their respite services, but are dissatisfied with the services' lack of flexibility, arbitrary limits on use, inability to respond to crises, lack of parental voice in forming or reforming services, etc. (JDD)

The project sought to determine the content and form of materials that would enable parents of children with disabilities to become informed critical consumers of respite services. Project activities included establishment and utilization of a national advisory panel; an indepth review of the literature on family supports, systems change, and…

This "Feature Issue" of the quarterly journal "Impact" presents 19 brief articles on family support systems in the United States for persons with developmental disabilities and their families. Emphasis is on provisions of Public Law 99-457. Articles include: "Family Support in the United States: Setting a Course for the…

The immediate and short-term effects of a preplanned, 10-day overnight respite on 14 mothers of school-age and adult children with multiple disabilities were evaluated. Results indicated that, during respite, mothers experienced increased well-being and less depression, and these changes continued after respite. Mothers also exhibited changes in…

This guide, based on a qualitative research study which identified primary stressors in families of children with traumatic brain injury (TBI), presents: (1) a summary of the needs of families affected by TBI; and (2) a proposed theoretical intervention model to meet those needs. The first section attempts to describe the present system of…