Purpose: Increasing demand for autism services is straining service systems. Tailoring services to best meet families' needs could improve their quality of life and decrease burden on the system. We explored overall, best, and worst met service needs, and predictors of those needs, for families of children with autism spectrum disorders. Methods:…

A cohort of nearly 11,000 persons was traced over 8 years to determine those who had moved from family care and those who had remained. The majority (85%) continued to live with families, and, for two thirds (67%), no future move was deemed necessary. The 2 main predictors of moving were as follows: A need had been previously recorded and the…

A study of respite services for families of persons with developmental disabilities indicated five major problems: inconsistent availability across the state, inconsistent planning and evaluation procedures, inadequate management information systems, lack of information to families, and lack of a career development model for respite workers.…

The 10 models of respite care for families of the retarded identified include: respite placement agencies, group day care, community residences, residential treatment facilities, group residential care, nursing homes, private inhome care, state institutions, camperships, and funding conduit. (Author/DB)

Designed for parents who wish to develop local respite care services for families with disabled children, this primer outlines strategies for: evaluating current available services and programs; pulling people together; conducting a needs assessment; raising money; and writing a proposal. (CB)

A respite care needs assessment survey was completed by 574 Iowa families of children with developmental disabilities. Results documented a void in the availability and accessibility of respite services regardless of demography, income level, or extent of disability. Respondents generally perceived that the availability of respite care service…

A survey of preschool children to establish the incidence of autistic or autistic-like behavior and unmet needs was carried out in the Lower Mainland of British Columbia. Forty-eight children ages two to seven were identified (3.8 boys to one girl). Among needs cited were behavior management consultation, respite care, and recreational programs.…

A survey of 190 families caring for people with mental retardation in North Wales addressed caregivers' assessments of unmet needs, particularly respite care needs; the relation between management of dependency and unmet needs; characteristics of families expressing the greatest need for respite care; and implications for policy and practice.…

The families of 26 adults with autistic spectrum disorders (ASDs) who either lived at home or maintained close contact with their families were interviewed about their social and psychological needs related to caring for the person with ASD. In contrast to previous studies of familial carers of children with ASDs, a strong association between…

Analyses involving 105 biological mothers of children (ages birth to adult) with mild/moderate or severe/profound retardation revealed a low level of use of respite care across groups and no significant difference between groups. The discrepancy between demonstrated need and service utilization is highlighted. (Author/JDD)

A survey of 20 health districts in England identified specialist services for individuals with intellectual disabilities and challenging behaviors. Great diversity was found in such services as specialized teams, staffed housing, assessment and short-term admission, and respite care facilities. Entitlement to appropriate treatment was more…

This brief paper reviews six studies which examined out-of-home placement by Israeli parents of children with severe developmental disabilities. Implications for policy and practice are drawn, including the need for respite-care services, extended hours in schools, recreation programs, support services for parents, and training programs for…