Parents of children who have autism spectrum disorder (ASD) often struggle to find appropriate educational and behavioural resources to support their children. These resources are particularly lacking in countries with fewer resources overall. The purpose of this study was to evaluate the effectiveness of a culturally appropriate training program…

Many children with fragile X syndrome (FXS) have complex communication needs and may benefit from augmentative and alternative communication (AAC). This qualitative study explored how four mother--child dyads used AAC in the home. Data were collected using participant observations, open-ended interviews, and record reviews, and analyzed using…

Introduction: Literature suggests that although behavioral therapy is an effective means of intervention for children with disabilities, family participation in these programs is often lacking. Several barriers exist to meaningful parent education and parent-professional partnerships, which can lead to lower quality outcomes for both the…

Epidermolysis Bullosa (EB) is a chronic disease, some types of which may have morbidity and mortality. That is why the patients must receive multidisciplinary care in case any complications arise. Families must be informed about the disease, about home care and receive genetic counselling. The importance of genetic counselling cannot be stressed…

In 1960, the Child Welfare League of America began the Day Care Project to survey research to clarify and revise day care services. A three stage program assessed attitudes and practices in seven communities. Stage I tapped community opinions (namely, working mothers) on child welfare issues. Stage II utilized field techniques to survey…