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Direct linkMackay, Jessica; Nixon, Gillian M.; Lafferty, Antony R.; Ambler, Geoff; Kapur, Nitin; Bergman, Philip B.; Schofield, Cara; Seton, Chris; Tai, Andrew; Tham, Elaine; Vora, Komal; Crock, Patricia; Verge, Charles; Musthaffa, Yassmin; Blecher, Greg; Caudri, Daan; Leonard, Helen; Jacoby, Peter; Wilson, Andrew; Choong, Catherine S.; Downs, Jenny – Journal of Autism and Developmental Disorders, 2022
Prader-Willi syndrome (PWS) is a rare genetic disorder characterised by neurodevelopmental delays, hyperphagia, difficulties with social communication and challenging behaviours. Individuals require intensive supervision from caregivers which may negatively affect caregiver quality of life. This study used data collected in the Australasian PWS…
Descriptors: Caregivers, Genetic Disorders, Intellectual Disability, Developmental Disabilities
