Background: A comprehensive multidisciplinary medical guideline for adults with Down syndrome is lacking in the Netherlands. In this study, we aim to explore parents' views on multidisciplinary care and identify which aspects of health care they find most important in the context of developing such a guideline. Method: This qualitative study used…

Barriers to accessing preventive care, and healthcare in general, include lack of language proficiency (Chang, Chan, & Han, 2015; Lebrun, 2012; Ponce et al., 2006; DeRose, Escarce, & Lurie, 2007; Jacobs, Chen, Karliner, Agger-Gupta, & Mutha, 2006), inability to afford health care (Aguilera & Massey, 2003), lack of health insurance…

Background: Research shows that adults with intellectual and developmental disabilities (IDD) increasingly outlive caregivers, who often struggle to plan for the future and have little support and knowledge surrounding long-term care planning. Methods: The study team conducted interviews with parents and siblings of adults with IDD and performed…

US surveys report higher prevalence of obesity in adults with intellectual disability. Health records of 40 adults with intellectual disability were retrospectively reviewed for data on health status, problem lists with International Classification of Diseases, Ninth Revision codes, medication lists, and health encounters over 18 months. Mean age…

Objectives: To evaluate the effectiveness of an online chronic disease self-management program for South Australia residents. Method: Data were collected online at baseline, 6 months, and 12 months. The intervention was an asynchronous 6-week chronic disease self-management program offered online. The authors measured eight health status measures,…

The purpose of this study was to employ complexity theory as a theoretical framework and technology to facilitate the development of a life-long learning model for non-working time in the interdependent homes for adults with Autism Spectrum Disorders (ASD). A "Shining Star Sustainable Action Project" of the ROC Foundation for Autistic…

This paper describes the experiences of the first author and his colleagues in the development and implementation of a depression prevention program that specifically targets Latina mothers. Building on the earlier papers that highlight the underutilization of mental health services by Latinos in general, this paper will make the case that the…

A focus group study was conducted with individuals with developmental disabilities to understand their perspectives on their health status, health promotion behaviors, and health care services they receive. The majority of participants reported good to excellent health, and all had some form of medical insurance. However, participants reported…

This article is the ninth installment of a series that chronicles the life of a fictional family--Amita and Samir, and their daughter with special needs, Anjali. This article looks back at the milestones in Anjali's life. It describes the transition processes she underwent from being a child to an adult. Now, married and pregnant with her second…

Recent comments by Baroness Warnock have reignited controversy over the relative merits of policies designed to promote inclusion and address special educational needs. These debates, conducted mainly between practitioners and parents, do not encourage input from historians but can usefully contextualize earlier models of service delivery. This…

THIS IS THE SEVENTH LISTING OF SPECIAL CLINICAL FACILITIES FOR MENTALLY HANDICAPPED CHILDREN COMPILED BY THE CHILDREN'S BUREAU, DEPARTMENT OF HEALTH, EDUCATION, AND WELFARE. THE CLINICS WHICH ARE LISTED CAN BE DEFINED AS OUTPATIENT MEDICAL FACILITIES PROVIDING COMPREHENSIVE EVALUATION, TREATMENT, OR FOLLOWUP SERVICES PRIMARILY TO CHILDREN…

This article defines managed care from the perspective of each stakeholder and describes how managed care is affecting community services and outpatient care for individuals with disabilities. Various types of managed care models are discussed and trends in the application of managed care to individuals with disabilities are also presented.…

Experience with provision of optimal health services to mentally retarded individuals in institutional settings can be applied and adapted to design services for such adults living in the community. Coordination of health care by a team of nurses, primary care physicians, and special medical services is recommended. (Author/DB)

This publication answers questions about the consequences of abusing commonly prescribed medications including opioids, central nervous system depressants, and stimulants. In addition to offering information on what research says about how certain medications affect the brain and body, this publication also discusses treatment options. It examines…

This article identifies possible adverse effects of managed health care delivery systems on adults with mental retardation. It is noted that few primary care providers, the "gatekeepers" of such systems, have special training in examining and treating adults with mental retardation and that disincentives exist in such programs for…