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Direct linkPalacio-Vieira, J. A.; Villalonga-Olives, E.; Alonso, J.; Valderas, J. M.; Herdman, M.; Espallargues, M.; Berra, S.; Rajmil, L. – Journal of Adolescence, 2010
The Spanish KIDSCREEN follow-up study reassessed the Spanish baseline sample (n = 840) of the European KIDSCREEN study 3 years later (2006). The aims of this paper were to describe the KIDSCREEN follow-up study and the pilot test, and to analyze participation rates and representativeness. Instruments included the KIDSCREEN-52 HRQoL measure and a…
Descriptors: Focus Groups, Quality of Life, Followup Studies, Foreign Countries
Chou, Yueh-Ching; Lee, Yue-Chune; Lin, Li-Chan; Kroger, Teppo; Chang, Ai-Ning – Intellectual and Developmental Disabilities, 2009
A structured interview survey was conducted in a major city in Taiwan to explore and compare older and younger family primary caregivers' well being and their future caregiving plans for these adults with intellectual disability. The sample size was 315 caregivers who were 55 years or older and who cared for adults with intellectual disability and…
Descriptors: Caregivers, Adults, Mental Retardation, Interviews
Grosse, Scott D.; Flores, Alina L.; Ouyang, Lijing; Robbins, James M.; Tilford, John M. – Journal of Child and Family Studies, 2009
The well-being of caregivers of children with spina bifida and other conditions is an important topic. We interviewed the primary caregivers of 98 children aged 0-17 years with spina bifida sampled from a population-based birth defects registry in Arkansas and the caregivers of 49 unaffected children. Measures of caregiver well-being were compared…
Descriptors: Caregivers, Congenital Impairments, Child Rearing, Well Being
