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Direct linkDawn E. Cavanagh; Sue Caton; Jodie Rawles; Katherine Runswick-Cole; Chris Hatton; Umesh Chauhan; Christine Hutchinson – Journal of Applied Research in Intellectual Disabilities, 2024
Background: People with intellectual disabilities are more likely to be prescribed psychotropic medication than the general population and are frequently prescribed multiple medications. Understanding people with intellectual disabilities and carer perspectives is essential to improving the quality of psychotropic medication prescribing and usage.…
Descriptors: Literature Reviews, Patients, Intellectual Disability, Drug Therapy
C. Viscogliosi; N. Dame; R. Duquette-Laplante; S. Rahimaly; B. Chassé; J. Mino-Roy; Y. Couturier; J. Dery; D. Giroux; V. Provencher – Educational Gerontology, 2024
For caregivers of people living with major neurocognitive disorders (MNCD), adapting and applying methods optimizing learning (MOL) to a specific situation, based on preserved cognitive skills, can be challenging. This study aimed to 1) co-develop workshops, a web application and accompanying materials to support the operationalization of MOL; 2)…
Descriptors: Dementia, Neurological Impairments, Foreign Countries, Caregivers
Gillian P. Andrikos; Cindy Ann Smith; Marina Ciccarelli – Australasian Journal of Special and Inclusive Education, 2024
Young people with intellectual disability (ID) frequently have challenges with self-regulation that impact their success and participation in daily life. As they often require additional support with self-regulation, it is important to consider regulatory function and skill development within the context of co-regulatory interactions with…
Descriptors: Self Management, Students with Disabilities, Intellectual Disability, Cooperation
Peter E. Langdon; Magdalena M. Apanasionok; Emma Scripps; Alastair Barrowcliff; Asit Biswas; Karen Bunning; Cheryl Burbidge; Katherine Byron-Daniel; Alex Cookson; Sarah Croom; Malwina Filipczuk; David Gillespie; Richard P. Hastings; Andrew Jahoda; Rachel McNamara; Lawrence Patterson; Dheeraj Rai; Robyn Steward; Kylie M. Gray – Journal of Applied Research in Intellectual Disabilities, 2024
Background: The aim of this feasibility study was to adapt and model a behavioural intervention for anxiety with autistic adults with moderate to severe intellectual disabilities. Method: Twenty-eight autistic adults with moderate or severe intellectual disabilities, 37 carers, and 40 therapists took part in this single-group non-randomised…
Descriptors: Autism Spectrum Disorders, Adults, Severe Intellectual Disability, Moderate Intellectual Disability
Maretha de Jonge; Mohamed Boutjdir; Tahar El-Korchi; Hafida Torres; Arun Karpur; Andy Shih; Abdeslem Elidrissi – Autism: The International Journal of Research and Practice, 2024
Understanding caregivers' needs is crucial for service planning and empowering caregivers around the world. Although research on autism from Arab countries is emerging, many countries are still unrepresented. Moreover, within-country disparities are understudied. This study investigated differences in needs, service use, and satisfaction between…
Descriptors: Rural Urban Differences, Satisfaction, Caregiver Attitudes, Autism Spectrum Disorders
Bello, John – ProQuest LLC, 2023
The Sonoran Desert is a magical place full of beauty and wonder. With an increase each year in the number of new families calling Arizona their home, so also comes an increase in pre-conceived notions of the dangers of the Sonoran Desert. Dangers such as plants, animals, and weather conditions can cause fears in families. Though these fears are…
Descriptors: Child Caregivers, Caregiver Attitudes, Play, Recreational Activities
Audrey A. Rouhandeh; Christine Honsberger; Nathaniel A. Shanok; Erin Brooker Lozott; Tess Levy; Alexander Kolevzon; Joseph D. Buxbaum; Marlene Sotelo; Jennifer Foss-Feig; Paige M. Siper – Journal of Autism and Developmental Disorders, 2024
As early identification of autism improves, there is a critical need for interventions to support the development of social communication skills in toddlers. Caregiver coaching and parental involvement is crucial for improving outcomes and providing children with adequate hours of planned active engagement. This pilot study assessed a 4-week…
Descriptors: Child Caregivers, Intervention, Interpersonal Competence, Communication Skills
Tanika Jackson-Richmond – ProQuest LLC, 2024
The COVID-19 pandemic presented unprecedented challenges particularly among group homes for individuals with intellectual and developmental disabilities (IDD) given the close interactions and living arrangements of residents. Thus, the purpose of this project was to determine if an educational intervention focused on COVID-19 and COVID-19…
Descriptors: Group Homes, COVID-19, Pandemics, Intellectual Disability
Hannah Feiner; Bailey Sone; Jordan Lee; Aaron J. Kaat; Megan Y. Roberts – Journal of Speech, Language, and Hearing Research, 2024
Purpose: Caregiver-mediated communication intervention outcomes are inconsistently measured, varying by assessment settings, materials, and activities. Standardized materials are often used for measuring outcomes, yet it remains unknown whether such standardized contexts equitably capture caregiver and child intervention outcomes representative of…
Descriptors: Interpersonal Communication, Intervention, Outcomes of Education, Autism Spectrum Disorders
Wei, Qi; Machalicek, Wendy; Zhu, Jinlan – Journal of Autism and Developmental Disorders, 2023
The present study evaluated treatment acceptability for behavioral interventions addressing challenging behaviors with Chinese caregivers of children with autism spectrum disorder. Factors influencing treatment acceptability (i.e., severity of challenging behavior and Chinese child-rearing values) were investigated. Caregivers of children aged…
Descriptors: Foreign Countries, Child Caregivers, Children, Autism Spectrum Disorders
Lin Sun – ProQuest LLC, 2023
China, classified as a middle-income country by the World Bank, faces a scarcity of resources in providing autism interventions, despite a comparable autism prevalence in the Western world. Most autism interventions in China are imported from high-income countries, highlighting the need to examine whether the focus of the interventions from mixed…
Descriptors: Foreign Countries, Child Caregivers, Children, Autism Spectrum Disorders
Maye, Melissa; Edmunds, Sarah; Stone-MacDonald, Angela; Carter, Alice S. – Early Childhood Education Journal, 2023
Many parents of toddlers and young children with autism spectrum disorder (ASD) face challenges in identifying community childcare centers that are adequately prepared to provide developmentally appropriate care for their toddler while also obtaining the recommended amount of early intervention services in their communities. Implementing…
Descriptors: Toddlers, Child Caregivers, Child Care, Caregiver Attitudes
Chicas, Vanessa E.; Steinway, Caren; Chen, Jack; Schwartz, Matthew C.; Wright, Charmaine; Cornacchia, Michelle; Davis, Thomas W.; Berens, John C.; Riddle, Ilka; Woodward, Jason F.; Jan, Sophia – Journal of Applied Research in Intellectual Disabilities, 2022
Background: Few family caregivers of individuals with intellectual or developmental disabilities develop long-term care (LTC) plans for their relative. Web-based interventions promoting LTC planning have potential for widespread adoption into clinical practice. Methods: We conducted focus groups with 49 primary caregivers of individuals with…
Descriptors: Caregivers, Intellectual Disability, Developmental Disabilities, Long Range Planning
Hanzen, Gineke; Waninge, Aly; van Nispen, Ruth M. A.; Vlaskamp, Carla; Post, Wendy J.; van der Putten, Annette A. J. – Journal of Applied Research in Intellectual Disabilities, 2021
Background: We investigated the effects of the "Care for Participation+" (CFP+) intervention on direct support professionals' (DSPs') attitudes regarding the participation of adults with visual and severe or profound intellectual disabilities (VSPID). Methods: We implemented a pilot non-randomized controlled trial with two control groups…
Descriptors: Intervention, Allied Health Personnel, Caregiver Attitudes, Attitudes toward Disabilities
Dick, Catherine C.; Ibañez, Lisa V.; DesChamps, Trent D.; Attar, Shana M.; Stone, Wendy L. – Journal of Autism and Developmental Disorders, 2022
Family-centered care represents a collaborative partnership between caregivers and service providers, and is associated with positive caregiver and child outcomes. This approach may be especially important for caregivers with early concerns about autism, as service providers are often the gateway to appropriately-specialized intervention.…
Descriptors: Early Intervention, Autism, Pervasive Developmental Disorders, Caregiver Attitudes
