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Direct linkRogers, Julie M.; Weaver, Amy L.; Havyer, Rachel D. – American Journal on Intellectual and Developmental Disabilities, 2022
Down syndrome (DS) research is advancing rapidly, yet efforts have raised ethical questions. This mixed methods study describes views of people with DS (self-advocates) and their parents regarding medical interventions for DS. Responses from 35/171 (20.5%) self-advocates and 430/867 (49.6%) parents showed the majority of self-advocates were glad…
Descriptors: Down Syndrome, Intervention, Self Concept, Parent Attitudes
Sarah Batbold; Gabrielle Cummings; Kirsten A. Riggan; Marsha Michie; Megan Allyse – Journal of Intellectual Disabilities, 2024
Individuals with Down syndrome (DS) experience increased risk of Alzheimer's disease (AD). Recent studies suggest that a vaccine against AD may be forthcoming. Parental buy-in is critical to the success of any intervention in this population, as adults with DS often rely on familial support. This study aims to characterize parents' perceptions of…
Descriptors: Parent Attitudes, Down Syndrome, Children, Alzheimers Disease
