Background: Interventions for challenging behaviours in individuals with intellectual disabilities benefit from outcome monitoring that takes clients' preferences into account. We determined clients' and representatives' preferred outcome domains and measures to secure their involvement in treatment decisions for challenging behaviours. Method: We…

Historically sleep was considered a passive activity, but research now strongly suggests that it is a time of neurological growth, where memories and skills are consolidated (Fallone et al., 2002). Good sleep is thought to influence cognitive, physical and emotional performance, and aid in effective emotional regulation (Alfano & Gamble,…

Cost-utility analyses are slowly becoming part of randomized control trials evaluating physical and mental health treatments and (preventive) interventions in child and adolescent development. The British National Institute of Health and Care Excellence, for example, insists on the use of gains in Quality Adjusted Life Years (QALYs) to compute the…

Purpose: The purpose of this scoping review was to synthesize the current evidence-based treatment practices used with school-aged children with any severity of traumatic brain injury (TBI) that could benefit the practice of speech-language pathologists (SLPs). Method: A scoping review of the literature was conducted following the Preferred…

This article evaluates the effectiveness of a multidisciplinary intensive community support service, using positive behavioural support (PBS) as a core intervention model to reduce behaviours of concern and to improve the quality of life and occupational involvement of individuals with a learning disability who present with behaviours that…

During the diagnostic evaluation period for autism or intellectual disability (ID), families of young children are at risk for poor adjustment. The present study aimed to document family quality of life (FQOL), along with associated risk and protective factors, during this critical step of families' services trajectory. FQOL was measured in a…

Adolescents with autism spectrum disorder (ASD) often experience challenges with social skill interactions that may affect their quality of life. Given that parents are often the most frequent and constant presence in their child's life, parents serve a vital role in their child's social and behavioral development. For this reason, children may…

Autism spectrum disorders (ASD) are often associated with intellectual disability (ID). ASD-specific group concepts usually focus on people on a high functioning level. The Autism-Competence-Group (AutCom) combines a psycho-educative approach with music and dance/movement interventions in adults with ASD and ID. AutCom includes 16 structured…

Research has shown that autistic adults have poor health outcomes. We conducted a systematic review to identify existing interventions to address health outcomes for autistic adults and to determine whether these interventions address the priorities of the autistic community. We searched PubMed for articles that included an intervention, a primary…

Background: Research into Rett syndrome has included various medical interventions. Non-medical interventions are relatively under-researched. Recent technological communication intervention advances have contributed to the evidence base in Rett syndrome. Method: The Embase, PsycINFO and MEDLINE were systematically searched for peer-reviewed…

Purpose: Research is only beginning to address the extent to which evidence-based parenting programmes have utility and merit within populations of children and families with neurodevelopmental disorders (NDD). The purpose of this paper is to evaluate a parent-focused intervention for families who have a child with a NDD and investigate whether…

Families that have children with ASD may experience increased stress due to a variety of factors, one of these factors being managing difficult behaviors. One area of behavioral difficulty that children with ASD experience is transitioning between activities. The Social Story is one intervention that has been studied as a transition support both…

This study presents initial evidence supporting the language adaptation of a brief measure of youths' internalizing problems--the Youth Internalizing Problems Screener (YIPS)--for use with Turkish adolescents within the context of school mental health screening. Results showed that responses to the Turkish version of the YIPS were characterized by…

Individuals with ASD often display externalizing behaviors, which have been associated with lower quality of life in adulthood. Social difficulties have been hypothesized to underlie externalizing problems among individuals with ASD (Klin and Volkmar in "Asperger Syndrome," 340-366, 2000), but this has never been tested empirically. We…

The impact of ASD on parental QOL was evaluated in the EpiTED cohort study at early adulthood. Two-third of parents of young adults with ASD (66.7%) reported that their QoL was at least moderately altered. The perceived impact of ASD on parental QoL was related to the young adults' level of adaptive skills, as well as to symptom severity and the…