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Direct linkMcKenzie, Karen; Armitage, Bethan; Murray, George; James, Ian – Journal of Applied Research in Intellectual Disabilities, 2021
Background: Therapeutic untruths (TU) are used in dementia services to de-escalate distressing situations. The present authors explored the use of TU by care staff supporting people with an intellectual disability who displayed behaviours that challenged. Method: Data were collected from 126 staff (female = 72.2%; mean age = 41.9 years, SD = 10.7)…
Descriptors: Stress Management, Dementia, Intellectual Disability, Behavior Problems
Jacinta Saldaris; Helen Leonard; Kingsley Wong; Peter Jacoby; Mary Spence; Eric D. Marsh; Tim A. Benke; Scott Demarest; Jenny Downs – Journal of Autism and Developmental Disorders, 2024
CDKL5 deficiency disorder (CDD) results in early-onset epilepsy and lifelong cognitive and motor impairments. With no validated measure for communication in CDD, this study evaluated the psychometric properties of the Communication and Symbolic Behavior Scales-Developmental Profile Infant Toddler Checklist (CSBS-DP ITC). Caregivers (n = 150;…
Descriptors: Validity, Infants, Toddlers, Check Lists
Sumithra Murthy; Sarah Parker Harris; Kelly Hsieh – Journal of Applied Research in Intellectual Disabilities, 2024
Background: Despite the enactment of disability laws/policies in India, research shows that caregivers of adults with intellectual and/or developmental disabilities experience inadequate formal supports/services due to dissemination barriers and lack of awareness about them. To address discrepancy between caregivers' support needs and the…
Descriptors: Foreign Countries, Intellectual Disability, Developmental Disabilities, Caregivers
Tschamper, Merete Kristin; Systad, Silje – Journal of Intellectual Disabilities, 2022
Persons with rare, epilepsy-related disorders often have intellectual disability and need long-term care. Informal and formal caregivers need information in order to care for the persons in a safe way. Aims: The aims of this review were: (1) to obtain an overview of caregiver-reported information needs; and (2) to investigate if there are…
Descriptors: Intellectual Disability, Epilepsy, Caregivers, Access to Information
Guerin, Suzanne; Nicholson, Emma; Keogh, Fiona; Dodd, Philip – International Journal of Developmental Disabilities, 2021
Background: Respite care has traditionally been conceptualised as a short residential break which allows families a break from caring responsibilities. In recent years, alternative respite services have been developed which promote greater social integration and normalisation for people with intellectual and other disabilities. Specific aim: The…
Descriptors: Adults, Intellectual Disability, Family Attitudes, Caregiver Attitudes
Embregts, Petri J. C. M.; Tournier, Tess; Frielink, Noud – Journal of Applied Research in Intellectual Disabilities, 2021
Background: The present study aimed to explore the experiences and needs of direct support staff during the initial stage of the COVID-19 lockdown in the Netherlands. Method: Overall, eleven direct support staff were recruited from five intellectual disability services to participate in this descriptive qualitative study. They recorded 34 audio…
Descriptors: Foreign Countries, COVID-19, Pandemics, Intellectual Disability
Kristina Rios; Meghan M. Burke – Review Journal of Autism and Developmental Disorders, 2021
Families face systemic barriers when deciding on educational services for their children with intellectual and developmental disabilities (IDD), including autism spectrum disorder (ASD). Further, caregiver health and well-being is critical for supporting children with IDD. In addition, research has shown a negative correlation between the quality…
Descriptors: Latin Americans, Intellectual Disability, Developmental Disabilities, Autism Spectrum Disorders
Chicas, Vanessa E.; Steinway, Caren; Chen, Jack; Schwartz, Matthew C.; Wright, Charmaine; Cornacchia, Michelle; Davis, Thomas W.; Berens, John C.; Riddle, Ilka; Woodward, Jason F.; Jan, Sophia – Journal of Applied Research in Intellectual Disabilities, 2022
Background: Few family caregivers of individuals with intellectual or developmental disabilities develop long-term care (LTC) plans for their relative. Web-based interventions promoting LTC planning have potential for widespread adoption into clinical practice. Methods: We conducted focus groups with 49 primary caregivers of individuals with…
Descriptors: Caregivers, Intellectual Disability, Developmental Disabilities, Long Range Planning
Crystian Moraes Silva Gomes; Arthur Cassa Macedo; Evelyn Brunorio Salamão; Kellen Valladão Schiavo; Lilian Gazzoli Zanotelli – International Journal of Developmental Disabilities, 2024
Studies on the COVID-19 pandemic highlight detrimental effects of social distancing on mental health. These effects were also observed among caregivers of people with intellectual and developmental disabilities (IDD), who undergo particular challenges in this context. This study aimed to identify the coping strategies adopted by caregivers of…
Descriptors: Mental Health, Coping, Caregivers, Intellectual Disability
Røstad-Tollefsen, Helen K.; Kolset, Svein O.; Retterstøl, Kjetil; Hesselberg, Heidi; Nordstrøm, Marianne – Journal of Applied Research in Intellectual Disabilities, 2021
Background: Adults with intellectual disabilities living in residential houses have a high prevalence of obesity which is related to poor dietary habits. Aim: The aim of this study was to assess supporting staff`s thoughts and experiences on factors influencing their opportunities to promote a healthy diet in adults with intellectual disabilities.…
Descriptors: Adults, Intellectual Disability, Physical Health, Health Promotion
Kelleher, Bridgette; Halligan, Taylor; Garwood, Tessa; Howell, Samantha; Martin-O'Dell, Breanna; Swint, Amber; Shelton, Liberty-Ann; Shin, Joey – Journal of Autism and Developmental Disorders, 2020
It is well-recognized that measurement options for diagnosing and monitoring children with neurogenetic syndromes (NGS) associated with moderate to severe intellectual impairment are limited (Berry-Kravis, Dev Med Child Neurol 10.1111/dmcn.13018, 2016), and caregivers experience significant concerns regarding the assessment process. However to…
Descriptors: Clinical Diagnosis, Neurological Impairments, Genetic Disorders, Intellectual Disability
RahKyung Kim; Stacy K. Dymond – Journal of Developmental and Physical Disabilities, 2020
The purpose of this study was to investigate critical independent living skills for adults with intellectual and developmental disabilities who live in the community and common reasons individuals lose their residential placement. Participants included residential specialists from 26 states who worked at small group homes and supported apartments.…
Descriptors: Group Homes, Daily Living Skills, Adults, Intellectual Disability
Humphreys, Lincoln; Bigby, Christine; Iacono, Teresa; Bould, Em – Journal of Intellectual & Developmental Disability, 2022
Background: Organisational culture in group homes for people with intellectual disabilities has been identified as an influence on service delivery and staff behaviour. The aim was to examine patterns of culture across group homes in disability organisations. Method: The Group Home Culture Scale (GHCS) was used to measure staff perceptions of…
Descriptors: Organizational Culture, Group Homes, Intellectual Disability, Caregiver Attitudes
Newton, D. C.; McGillivray, J. A. – Journal of Intellectual & Developmental Disability, 2019
Background: Informal carers often play an integral role in the lives of people with intellectual disability (ID) residing in the community. In this study, we explored the extent to which carers of people with ID believe that the health care needs of the person they care for are being accommodated by general practice. Method: Semi-structured…
Descriptors: Foreign Countries, Intellectual Disability, Caregivers, Health Services
Wark, Stuart; Bryant, Lia; Morales-Boyce, Tyson; Deuter, Kate – Journal of Intellectual & Developmental Disability, 2023
Background: Australian research indicates that post-parental care transitions are rarely planned and primarily occur following a crisis for a primary carer. This paper examines disability staff perceptions of transitions for people with intellectual disability and their ageing carers in rural South Australia. Method: A focus group interview model…
Descriptors: Foreign Countries, Delivery Systems, Rural Areas, Intellectual Disability
