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Nanda de Knegt – Journal of Developmental and Physical Disabilities, 2023
Many people with intellectual disabilities (ID) depend on caregivers for pain identification and pain management decisions. Therefore, the aim was to explore caregivers' experience with pain in Prader-Willi syndrome (PWS), Williams syndrome (WS), and Fragile-X syndrome (FXS). A questionnaire was developed to gather third-party reporting of mainly…
Descriptors: Pain, Intellectual Disability, Identification, Caregiver Role
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Grindrod, Andrea; Rumbold, Bruce – Journal of Applied Research in Intellectual Disabilities, 2017
Background: There is broad consensus within the disability field that the end-of-life care offered to people with intellectual disabilities should be of a quality consistent with that advocated by contemporary palliative care. In practice, however, various barriers are encountered when applying palliative care strategies to the end-of-life care of…
Descriptors: Foreign Countries, Death, Medical Services, Intellectual Disability
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Mmbwanga, Daniel M.; Matemba, Collins K.; Bota, Kennedy N. – Journal of Education and Practice, 2015
The mentally challenged child (MC) can achieve a lot if the right environment and curriculum are designed for him/her. However, the realization of the desirable outcomes faces many challenges. The objective of the study was to examine institutional and personnel-related challenges facing education programs for the MC persons at Kaimosi Special…
Descriptors: Intellectual Disability, Special Schools, Foreign Countries, Surveys