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Alison Finch; Michela Quecchia – Educational Action Research, 2025
This paper reflects on the dynamic of co-developing knowledge within a Community-Based Participatory Research (CBPR) project in the UK that set out to direct teenage and young adult Ambulatory Care. This is a service that offers cancer treatment that would have once required inpatient hospital stays. Working within a Community-of-Inquiry (CoI),…
Descriptors: Participatory Research, Action Research, Communities of Practice, Inquiry
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Daniels, Benjamin; Boffa, Jody; Kwan, Ada; Moyo, Sizulu – Research Ethics, 2023
Simulated standardized patients (SPs) are trained individuals who pose incognito as people seeking treatment in a health care setting. With the method's increasing use and popularity, we propose some standards to adapt the method to contextual considerations of feasibility, and we discuss current issues with the SP method and the experience of…
Descriptors: Deception, Informed Consent, Simulation, Patients
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Gomez-Jones, Tashaé; Kao, Robert M. – American Biology Teacher, 2021
Over the past decade, the development of three-dimensional mammalian cell organization--called human organoids--from stem cells has provided a framework for future clinical therapies. As human organoid research progresses, we also need to keep in mind the cross-cultural and ethical dimensions of human organoids research. Our review article aims to…
Descriptors: Ethics, Donors, Human Body, Cytology
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Maduka-Okafor, Ferdinand Chinedum; Okoye, Onochie Ike; Oguego, Ngozi; Udeh, Nnenma; Aghaji, Ada; Okoye, Obiekwe; Ezegwui, Ifeoma R.; Nwobi, Emmanuel Amaechi; Ezugwu, Euzebus; Onwasigwe, Ernest; Umeh, Rich E.; Aneji, Chiamaka – Research Ethics, 2022
School-based research presents ethical challenges, especially with respect to informed consent. The manner in which pupils and their parents respond to an invitation to participate in research is likely to depend on several factors, including the level of trust between them and the researchers. This paper describes our recruitment and consent…
Descriptors: Recruitment, Elementary School Students, Secondary School Students, Children
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Nalubega, Sylivia; Cox, Karen; Mugerwa, Henry; Evans, Catrin – Research Ethics, 2021
There is a gap in evidence regarding how research trial closure processes are managed to ensure continuity of HIV care for HIV positive participants following trial closure within low income settings. This research aimed to establish how research staff in Uganda understood and practised post-trial care for HIV positive trial participants. A…
Descriptors: Ethics, Medical Research, Acquired Immunodeficiency Syndrome (AIDS), Drug Therapy
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Gabriele, Edward F. – Research Management Review, 2015
In contemporary society, the fundamental nature of healthcare and healthcare-related research has come under particular scrutiny. While decidedly based upon human need and human care, a wide variety of historical developments often can collide not just with how these services are effected, but even more deeply as to their meaning in human culture.…
Descriptors: Health Services, Medical Research, Innovation, Administrator Role
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Cuesta-Briand, Beatriz; Wray, Natalie; Boudvile, Neil – Research Ethics, 2015
"Ethics in practice" are the ethical dilemmas that arise during the conduct of research. In this article, we describe the ethical issues we faced when conducting an exploration of the experiences of 19 potential living kidney donors, and demonstrate how reflexivity can guide the ethical decision-making throughout the research process. We…
Descriptors: Ethics, Medical Research, Risk, Emotional Disturbances