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Direct linkDick, Catherine C.; Ibañez, Lisa V.; DesChamps, Trent D.; Attar, Shana M.; Stone, Wendy L. – Journal of Autism and Developmental Disorders, 2022
Family-centered care represents a collaborative partnership between caregivers and service providers, and is associated with positive caregiver and child outcomes. This approach may be especially important for caregivers with early concerns about autism, as service providers are often the gateway to appropriately-specialized intervention.…
Descriptors: Early Intervention, Autism, Pervasive Developmental Disorders, Caregiver Attitudes
Specialized Primary Care Medical Home: A Positive Impact on Continuity of Care among Autistic Adults
Hand, Brittany N.; Coury, Daniel L.; White, Susan; Darragh, Amy R.; Moffatt-Bruce, Susan; Harris, Lauren; Longo, Anne; Garvin, Jennifer H. – Autism: The International Journal of Research and Practice, 2021
While the medical home has proven effective at improving continuity of care among other populations, there is a paucity of literature testing the effectiveness of medical homes in serving the healthcare needs of autistic adults. We conducted a retrospective cohort study to compare the continuity of care of autistic adult patients at a specialized…
Descriptors: Autism, Pervasive Developmental Disorders, Access to Health Care, Health Services
Mazurek, Micah O.; Stobbe, Gary; Loftin, Rachel; Malow, Beth A.; Agrawal, Mavara M.; Tapia, Mark; Hess, Amy; Farmer, Justin; Cheak-Zamora, Nancy; Kuhlthau, Karen; Sohl, Kristin – Autism: The International Journal of Research and Practice, 2020
Transition-age youth and young adults with autism spectrum disorder have complex healthcare needs, yet the current healthcare system is not equipped to adequately meet the needs of this growing population. Primary care providers lack training and confidence in caring for youth and young adults with autism spectrum disorder. The current study…
Descriptors: Adolescents, Young Adults, Autism, Pervasive Developmental Disorders
Carbone, Paul S.; Murphy, Nancy A.; Norlin, Chuck; Azor, Virgina; Sheng, Xiaoming; Young, Paul C. – Journal of Autism and Developmental Disorders, 2013
Parents of children with autism spectrum disorders (ASD) (n = 144) and primary care providers (PCPs) (n = 144) completed similar surveys assessing the ability of the PCP to address ASD-specific needs. Parents also rated their PCP's ability to deliver family-centered care. A majority of parents rated their PCP's ability as "not good" in addressing…
Descriptors: Parents, Autism, Pediatrics, Physicians
Warfield, Marji Erickson; Crossman, Morgan K.; Delahaye, Jennifer; Der Weerd, Emma; Kuhlthau, Karen A. – Journal of Autism and Developmental Disorders, 2015
We conducted in-depth case studies of 10 health care professionals who actively provide primary medical care to adults with autism spectrum disorders. The study sought to understand their experiences in providing this care, the training they had received, the training they lack and their suggestions for encouraging more physicians to provide this…
Descriptors: Primary Health Care, Physicians, Autism, Case Studies
Golnik, Allison; Maccabee-Ryaboy, Nadia; Scal, Peter; Wey, Andrew; Gaillard, Philippe – Intellectual and Developmental Disabilities, 2012
We assessed the extent to which parents of children with autism spectrum disorder report that they are engaged in shared decision making. We measured the association between shared decision making and (a) satisfaction with care, (b) perceived guidance regarding controversial issues in autism spectrum disorder, and (c) perceived assistance…
Descriptors: Primary Health Care, Parents, Autism, Decision Making
