ERIC Number: EJ1319960
Record Type: Journal
Publication Date: 2022-Jan
Pages: 7
Abstractor: As Provided
ISBN: N/A
ISSN: ISSN-1360-2322
EISSN: N/A
Paid Carers' Understanding and Experiences of Meaningful Involvement in Bereavement for People with Intellectual Disability When a Significant Other Is Dying
Hedayioglu, Julie; Marsden, Sue; Sackree, Amy; Oliver, David
Journal of Applied Research in Intellectual Disabilities, v35 n1 p143-149 Jan 2022
Background: Wider communication about death and dying for those with intellectual disabilities has been highlighted as being of key importance. Objective: To gain the perspective of paid carers based in residential homes about meaningfully supporting individuals with intellectual disabilities in the bereavement process. Methods: Semi-structured interviews were conducted with paid carers working across two residential homes. Results: Four themes were identified: (a) challenges in having conversations about death and dying; (b) meaningful involvement of residents in the bereavement process; (c) the relationship between paid carers and residents (including the impact of a resident's death on paid carers); and (d) the support needs of paid carers. Conclusions: The recommendations from previous research of meaningfully involving people with intellectual disabilities in the bereavement process have not filtered fully into practice. Paid carers still highlight the need for specialist support and advice to help them discuss and increase involvement in death and dying.
Descriptors: Caregivers, Residential Care, Group Homes, Intellectual Disability, Grief, Interpersonal Relationship, Death, Interpersonal Communication, Caregiver Role, Inclusion, Specialists
Wiley. Available from: John Wiley & Sons, Inc. 111 River Street, Hoboken, NJ 07030. Tel: 800-835-6770; e-mail: cs-journals@wiley.com; Web site: https://bibliotheek.ehb.be:2191/en-us
Publication Type: Journal Articles; Reports - Research
Education Level: N/A
Audience: N/A
Language: English
Sponsor: N/A
Authoring Institution: N/A
Grant or Contract Numbers: N/A