Background: Illness and death are part of life for everyone, including people with intellectual disabilities. This study investigated the extent to which staff communicate about death with people with intellectual disability facing terminal illness or bereavement. Method: Staff who support people with intellectual disability in the UK (n = 690)…

Caregivers experience multiple losses during the downhill trajectory of a loved one's terminal illness. Using mixed methods, this two-stage study explored caregiver grief during a terminal illness and after the care recipient's death. Caregiver grief was a state of heightened responsiveness during end-stage care: anxiety, hostility, depression,…

In this article, the authors explore the creative and expressive arts, specifically "memoirs of loss" as a healing resource that both engenders hope and love and meaning-filled care, and emancipatory and humanist popular education. The authors present some key definitions and the general background to this article's creation. Then, they…

Anticipatory grief may have beneficial effects for caregivers of people with HIV infection or AIDS. Illness duration, stigmatization, and multiple losses may impede the caregiver's ability to effectively engage in the grief process, however. Discusses the impact of these aspects of the disease on the anticipatory grief process and mourning tasks…

The authors integrate poetry and narrative into their self-study application of the research methodology known as Appreciative Inquiry (AI) focused on: (a) their personal and professional practice and development; (b) their teaching practice in universities and informal/popular education settings; and, (c) their educational research in the area of…

This guide is intended for staff development instructors responsible for inservice education on the topic of fostering humane care for dying persons in long-term care. The introduction discusses the guide's development based on input from administrators, staff, and families of residents in long-term care facilities and focus group interviews in…