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Measurement Properties of the German Version of the Cambridge Examination for Mental Disorders of Older People with Down Syndrome and Others with Intellectual Disabilities (CAMDEX-DS)
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Sandra V. Loosli; Lennart C. Neumann; Elisabeth Wlasich; Catharina Prix; Laura Koll; Endy Weidinger; Jonathan Vöglein; Olivia Wagemann; Adrian Danek; Georg Nübling; Johannes Levin – Journal of Intellectual & Developmental Disability, 2024
Background: The CAMDEX-DS is an instrument to diagnose Alzheimer's disease (AD) in Down syndrome consisting of an informant interview and a cognitive test battery (CAMCOG-DS). Measurement properties of the German CAMDEX-DS were investigated. Method: Fifty-five adults with Down syndrome (19-58 years) participated in this observational study.…
Descriptors: Foreign Countries, Diagnostic Tests, Alzheimers Disease, Down Syndrome
Dementia in People with Severe/Profound Intellectual (and Multiple) Disabilities: Applicability of Items in Dementia Screening Instruments for People with Intellectual Disabilities
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Wissing, Maureen B. G.; Dijkstra, Roos; van der Wal, Ina A.; Grootendorst, Esther S.; Hobbelen, Johannes S.M.; van der Putten, Annette A. J.; De Deyn, Peter P.; Waninge, Aly; Dekker, Alain D. – Journal of Mental Health Research in Intellectual Disabilities, 2022
Introduction: Diagnosing dementia in people with severe/profound intellectual (and multiple) disabilities (SPI(M)D) is complex. Whereas existing dementia screening instruments as a whole are unsuitable for this population, a number of individual items may apply. Therefore, this study aimed to identify applicable items in existing dementia…
Descriptors: Dementia, Severe Intellectual Disability, Multiple Disabilities, Screening Tests
Dementia in People with Severe/Profound Intellectual (And Multiple) Disabilities: Practice-Based Observations of Symptoms
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Wissing, Maureen B. G.; Fokkens, Andrea S.; Dijkstra, Roos; Hobbelen, Johannes S. M.; van der Putten, Annette A. J.; De Deyn, Peter P.; Waninge, Aly; Dekker, Alain D. – Journal of Mental Health Research in Intellectual Disabilities, 2022
Introduction: Observable dementia symptoms are hardly studied in people with severe/profound intellectual (and multiple) disabilities (SPI(M)D). Insight in symptomatology is needed for timely signaling/diagnosis. This study aimed to identify practice-based observations of dementia symptoms in this population. Methods: Care professionals and family…
Descriptors: Dementia, Severe Intellectual Disability, Multiple Disabilities, Symptoms (Individual Disorders)
A Neuroimaging Proof of Principle Study of Down's Syndrome and Dementia: Ethical and Methodological Challenges in Intrusive Research
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d'Abrera, J. C.; Holland, A. J.; Landt, J.; Stocks-Gee, G.; Zaman, S. H. – Journal of Intellectual Disability Research, 2013
Background: Research into specific illnesses and the development of new treatments may only become possible as new technologies become available. When used for research, such technologies may best be described as "intrusive", in that they require a considerable willingness and commitment on the part of the participants. This has…
Descriptors: Down Syndrome, Dementia, Ethics, Neurological Impairments
Experiences of Supporting People with Down Syndrome and Alzheimer's Disease in Aged Care and Family Environments
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Carling-Jenkins, Rachel; Torr, Jennifer; Iacono, Teresa; Bigby, Christine – Journal of Intellectual & Developmental Disability, 2012
Background: Research addressing the experiences of families of adults with Down syndrome and Alzheimer's disease in seeking diagnosis and gaining support is limited. The aim of this study was to gain a greater understanding of these processes by exploring the experiences of families and carers in supporting people with Down syndrome and…
Descriptors: Alzheimers Disease, Down Syndrome, Aging (Individuals), Older Adults
Sensory Impairments and Health Concerns Related to the Degree of Intellectual Disability in People with Down Syndrome
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Maatta, Tuomo; Kaski, Markus; Taanila, Anja; Keinanen-Kiukaanniemi, Sirkka; Iivanainen, Matti – Down Syndrome Research and Practice, 2006
The relationship between poor health and cognitive impairment is not fully understood yet. People with Down syndrome are prone to a number of health problems, including congenital heart defect, visual impairment, hearing loss, autoimmune diseases, epilepsy, early-onset Alzheimer's disease and intellectual disability. Our aim was to assess the…
Descriptors: Visual Impairments, Mental Retardation, Alzheimers Disease, Dental Health
Mental Health, Behaviour and Intellectual Abilities of People with Down Syndrome
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Maatta, Tuomo; Tervo-Maatta, Tuula; Taanila, Anja; Kaski, Markus; Iivanainen, Matti – Down Syndrome Research and Practice, 2006
The mental health, adaptive behaviour and intellectual abilities of people with Down syndrome (n=129) were evaluated in a population-based survey of social and health care records. Females had better cognitive abilities and speech production compared with males. Males had more behavioural problems than females. Behaviour suggestive of attention…
Descriptors: Speech Communication, Behavior Problems, Attention Deficit Hyperactivity Disorder, Age Differences