NotesFAQContact Us
Collection
Advanced
Search Tips
Showing all 2 results Save | Export
'It Is a Complex Process, but It's Very Important to Return These Results to Participants'. Stakeholders' Perspectives on the Ethical Considerations for Returning Individual Pharmacogenomics Research Results to People Living with HIV
Peer reviewed Peer reviewed
Direct linkDirect link
Sylvia Nabukenya; David Kyaddondo; Adelline Twimukye; Ian Guyton Munabi; Catriona Waitt; Erisa S Mwaka – Research Ethics, 2024
This study aimed to explore stakeholders' perspectives on the ethical considerations for returning individual pharmacogenomics research results to people living with HIV. A qualitative approach to investigation involved five focus group discussions with 30 Community representatives, 12 key informant interviews with researchers, and 12 in-depth…
Descriptors: Foreign Countries, Acquired Immunodeficiency Syndrome (AIDS), Pharmacology, Genetics
Experiences and Practices of Key Research Team Members in Obtaining Informed Consent for Pharmacogenetic Research among People Living with HIV: A Qualitative Study
Peer reviewed Peer reviewed
Direct linkDirect link
Nabukenya, Sylvia; Ochieng, Joseph; Kaawa-Mafigiri, David; Munabi, Ian; Nakigudde, Janet; Nakwagala, Frederick Nelson; Barugahare, John; Kwagala, Betty; Ibingira, Charles; Twimwijukye, Adelline; Sewankambo, Nelson; Sabakaki Mwaka, Erisa – Research Ethics, 2022
This study aimed to explore experiences and practices of key research team members in obtaining informed consent for pharmacogenetics research and to identify the approaches used for enhancing understanding during the consenting process. Data collection involved 15 qualitative, in-depth interviews with key researchers who were involved in…
Descriptors: Researchers, Pharmacology, Drug Therapy, Acquired Immunodeficiency Syndrome (AIDS)