Very little research has been conducted on insurance type (private vs. public funded) and costs, accessibility, and use of services of children with autism. Analysis of five parent reported outcomes: (a) out-of-pocket expenditures, (b) variety of services used, (c) access to services, (d) child and family service outcomes, and (e) satisfaction…

The nation's child protection system (CPS) has historically focused on preventing maltreatment in high-risk families, whose children have already been maltreated. But, as Jane Waldfogel explains, it has also begun developing prevention procedures for children at lower risk--those who are referred to CPS but whose cases do not meet the criteria for…

Transition is a dynamic lifelong process that seeks to meet individual needs as a person with disabilities moves from childhood to adulthood. Per laws in most states, once an individual becomes 18 years of age that person is considered an adult regardless of the level of his or her disability. Initiating planning for adult living activities and…

The report discusses financing respite care (short term care of the handicapped to provide family relief) services for the developmentally disabled (DD). Respite care is examined as a component of a comprehensive service delivery system for the DD, and the scope of respite care services as conceptualized by its advocates is reviewed. Nationally…

Analysis of data on family support services and spending for individuals with developmental disabilities presents information on cash subsidy payments, respite care, and other family support. A graph shows U.S. spending for family support, 1986-1998. Additional tables break down subsidy spending for family support services by state in 1998 and…

Children with disabilities receive most of their support from families. While most family caregivers are mothers or fathers, grandparents are increasingly providing care for children with disabilities. In addition, family caregivers come from diverse cultural backgrounds that impact their views on disability. This paper reviews the literature on…

A social anthropologist and a child psychologist interviewed 171 Norwegian families with preschool children having nine different handicaps regarding consequences of the handicap for the family, respite care assistance, kindergartens, home help, community aid, and financial assistance. Findings indicated the major problem to be underutilization of…

Presents results of a three-state mailed survey that examined pre- and postadoptive service needs of 562 families who adopted children, most of whom had special needs, through public child welfare agencies. Financial and medical adoptive subsidies emerged as pivotal service needs. Counseling and education services and respite care were evaluated…

Basic information about respite care for individuals with disabilities and their families is presented in a question-and-answer format. The following questions are addressed: "What is respite?"; "Who needs respite services?"; "Who provides respite services?"; "What kinds of services are provided?"; "How…

This hearing addresses issues in the reauthorization of the Child Abuse Challenge Grant Program, which provides federal funds to match state funding for child abuse prevention programs, and reauthorization of the Temporary Child Care for Handicapped Children and Crisis Nurseries Act, which provides respite care for families with children with…

This report focuses on positive practices in providing support services to families of children with severe disabilities and chronic illnesses, based on visits to three sites in Maryland: the Family Support Program at the Kennedy Institute in Baltimore, the Coordinating Center for Home and Community Care, and Sick Kids Need Involved People (SKIP).…

Two newsletters focus on alternatives for community living and approaches to teaching social skills to children and youth with disabilities. The first issue provides information on some family support services and community-based living arrangements that are currently available for children with severe and profound handicaps or chronic illnesses.…

This conference proceedings reports on a 1989 meeting addressing respite care for families of children with mental, emotional or behavioral disorders. The conference addressed: (1) respite care concepts, programs, and issues; and (2) planning for designing, financing, and implementing state and local respite programs. The report contains the…

In this paper, by an educator who is also the parent of a son with mental retardation, the urgent needs of families whose children have chronic medical needs in addition to disabilities are discussed. One family's efforts to maintain their severely retarded and disabled son at home are described as an illustration not only of the unsurpassed…

The "support not supplant" theory of family support services is explained, and results of a national study of trends in family support are analyzed. Current efforts, state legislation, funding levels, respite services, financial assistance, and emerging issues are discussed. A directory of state family support programs is appended. (PB)