A social anthropologist and a child psychologist interviewed 171 Norwegian families with preschool children having nine different handicaps regarding consequences of the handicap for the family, respite care assistance, kindergartens, home help, community aid, and financial assistance. Findings indicated the major problem to be underutilization of…

This report examines respite care services that provide temporary relief to family members and other caretakers of children at risk of abuse or neglect including children who are mentally retarded, behaviorally disturbed, physically disabled, or chronically or terminally ill. In 1988 the 25 states surveyed funded 111 respite care programs as did…

This paper profiles nine model programs for supporting families who care for a child with a severe illness or one or more disabilities and discusses current trends as they emerged from interviews with key persons in the field. Core components examined include self-help, advocacy, parent education, respite care, family-centered case management, and…