The nation's child protection system (CPS) has historically focused on preventing maltreatment in high-risk families, whose children have already been maltreated. But, as Jane Waldfogel explains, it has also begun developing prevention procedures for children at lower risk--those who are referred to CPS but whose cases do not meet the criteria for…

Basic information about respite care for individuals with disabilities and their families is presented in a question-and-answer format. The following questions are addressed: "What is respite?"; "Who needs respite services?"; "Who provides respite services?"; "What kinds of services are provided?"; "How…

This report focuses on positive practices in providing support services to families of children with severe disabilities and chronic illnesses, based on visits to three sites in Maryland: the Family Support Program at the Kennedy Institute in Baltimore, the Coordinating Center for Home and Community Care, and Sick Kids Need Involved People (SKIP).…

The "support not supplant" theory of family support services is explained, and results of a national study of trends in family support are analyzed. Current efforts, state legislation, funding levels, respite services, financial assistance, and emerging issues are discussed. A directory of state family support programs is appended. (PB)

This report describes results of an evaluation of respite care programs and crisis nursery programs for children with disabilities, based on survey forms received from 81 programs and site visits to selected programs across the United States. The survey of crisis nursery programs and the survey of respite care programs gathered data on amount of…

Used mail survey to assess contributions of voluntary organizations providing for children with life-limiting incurable disorders. Found a variety of services, including information service, emotional support and counseling, patient and family support, and telephone helpline. Respite care was associated with annual budget size. Unstable funding,…

Provides parents and other concerned persons with information about some of the family support services and community-based living arrangements that are currently available to assist families in meeting the needs of their children who are severely and profoundly handicapped and/or chronically ill. Discussion includes funding sources, respite care,…

We examined the service needs of foster families with children who have disabilities. Foster parents in a large Canadian city were asked "What services or supports would be helpful to you?" The responses to this question were edited for clarity and to eliminate redundancies, and sorted into piles of like statements by a group of 15…

This paper profiles nine model programs for supporting families who care for a child with a severe illness or one or more disabilities and discusses current trends as they emerged from interviews with key persons in the field. Core components examined include self-help, advocacy, parent education, respite care, family-centered case management, and…

This annotated bibliography presents a selective overview of materials on the topic of children with special health needs. Materials are divided into the following topics: (1) early identification and intervention (21 resources); (2) family-centered, community-based, culturally competent care (23 resources); (3) financing services (10 resources);…

This volume consists of a background discussion, coordinator's manual, and training manual dealing with developing programs for the in-home respite care (IHRC) of the developmentally disabled. Addressed in the background information unit are the nature of developmental disabilities; program variables, planning, and funding; and practical…