Children with disabilities receive most of their support from families. While most family caregivers are mothers or fathers, grandparents are increasingly providing care for children with disabilities. In addition, family caregivers come from diverse cultural backgrounds that impact their views on disability. This paper reviews the literature on…

Basic information about respite care for individuals with disabilities and their families is presented in a question-and-answer format. The following questions are addressed: "What is respite?"; "Who needs respite services?"; "Who provides respite services?"; "What kinds of services are provided?"; "How…

This paper profiles nine model programs for supporting families who care for a child with a severe illness or one or more disabilities and discusses current trends as they emerged from interviews with key persons in the field. Core components examined include self-help, advocacy, parent education, respite care, family-centered case management, and…