Children with disabilities receive most of their support from families. While most family caregivers are mothers or fathers, grandparents are increasingly providing care for children with disabilities. In addition, family caregivers come from diverse cultural backgrounds that impact their views on disability. This paper reviews the literature on…

Two newsletters focus on alternatives for community living and approaches to teaching social skills to children and youth with disabilities. The first issue provides information on some family support services and community-based living arrangements that are currently available for children with severe and profound handicaps or chronic illnesses.…

The handbook provides parents of children with disabilities guidance on planning for the child's future needs with special attention to resources and laws of Iowa. Section 1 gives a Future Planning Checklist and definitions of common legal terms. Section 2 addresses estates, trusts, and wills and provides common estate planning questions and…

The challenges that families face in caring for a child with a disability or a chronic illness are reviewed in this report on respite care. A parent's narrative describes the difficulties in providing around-the-clock care to a child with a chronic illness. The benefits of respite care are outlined as follows: gives the family peace of mind,…

This booklet documents the ability of parents of children with special health needs and disabilities to achieve balance in their lives, by moving from crisis to control, from challenge to opportunity, from questions to answers. The booklet discusses concerns that confront parents of children with special needs, and answers the most common…