Family support services are systematic efforts to support natural, adoptive, or foster families who have a family member with a disability. Programs vary in the types of services offered, goals, and number of families served. The most promising approaches to family support provide services that are flexible and individualized, build on informal…

This special issue of a periodical focuses on building support and resources for families of children with special needs. It contains 13 articles in addition to descriptions of 10 programs serving special needs families at the local level, a list of 15 resource organizations and 10 publications/audiovisual aids, and a message from the coalition's…

The use of crisis nursery care as a viable alternative for the consumer experiencing chronic and ongoing family crises calls for consideration of various programmatic and staffing issues. Combinations of family problems, including homelessness, substance abuse, incarceration, family violence, and chronic illness of a family member, may precipitate…

Over the 3 years of funding, 1983-1986, the Volunteers in Partnership with Parents Project (VIPP), a Handicapped Children's Early Education Program (HCEEP) Model Demonstration Program funded by the U.S. Department of Education, designed and implemented a program model for parents in rural North Carolina who had significantly handicapped preschool…

Used mail survey to assess contributions of voluntary organizations providing for children with life-limiting incurable disorders. Found a variety of services, including information service, emotional support and counseling, patient and family support, and telephone helpline. Respite care was associated with annual budget size. Unstable funding,…

The Maryland Family Support Services Consortium is a 3-year demonstration project which developed unique family support models at five sites serving the needs of families with a developmentally disabled child (ages birth to 21). Caseworkers provided direct intensive services to 224 families over the 3-year period, including counseling, liaison and…

This study examined provision of services to children with developmental disabilities and their families in the context of requirements of Part H of the Individuals with Disabilities Education Act, which requires family centered services for infants and toddlers. Focus group discussions were held with health professionals at two sites in each of…

Providing cost-effective services in 15 counties of Southeast Kansas, the Infant and Early Childhood Intervention Program (IECIP) teaches parents to provide daily one-to-one therapy in gross and fine perceptual motor development, speech and language development, social adjustment, and behavior management for developmentally delayed children from…

Provides parents and other concerned persons with information about some of the family support services and community-based living arrangements that are currently available to assist families in meeting the needs of their children who are severely and profoundly handicapped and/or chronically ill. Discussion includes funding sources, respite care,…

Special Training for Exceptional People (STEP) is a private, nonprofit agency serving children with developmental disabilities (0-22 years) and their families in the south-central section of Montana, encompassing Billings and a Crow Indian Reservation. One of the services provided by STEP is specialized family care, to prevent placement out of…

In early 2000, the Center on Human Policy started to receive reports that children with complex medical needs were being placed in nursing homes because of home care nursing shortages. Sensing that framing the issue as a nursing shortage directed solutions that revolved around nursing agency staff recruitment and retention strategies, the authors…

We examined the service needs of foster families with children who have disabilities. Foster parents in a large Canadian city were asked "What services or supports would be helpful to you?" The responses to this question were edited for clarity and to eliminate redundancies, and sorted into piles of like statements by a group of 15…

This final report describes the Traumatic Brain Injury (TBI) Home/School Support project, an Oregon project which attempted to decrease stress in parents caring for school-aged children with TBI and to provide support to schools serving students with TBI. During its 3 years of development, the project involved over 50 families of children, ages…

This monograph describes Families First, a family-designed system of mental health care for children in Essex County, New York. Philosophical principles of family-driven service delivery are outlined and illustrated with comments from participants. The planning that went into developing the Families First program is described, including initial…

This report describes a model designed to provide family-centered, community-based coordinated services for families and their children with chronic health care needs. The model, which was implemented to serve 208 children over a 5-year period, is based on three key concepts: families should have the choice to receive services in their homes and…