This fact sheet points out that knowledge of the process of grief (defined as one's own personal experience of loss) and ways of helping individuals and families cope with their loss experiences can be an invaluable asset to crisis nurseries and respite care programs and their service providers. The fact sheet lists the emotions of grief, and…

The monograph provides an historical overview of services for families of disabled children and considers strategies for increasing family support. The historical analysis traces factors influencing the lack of priority placed on family services and describes trends in family resource services. Advantages and drawbacks of the continuum and array…

Presented is the manual which resulted from a project to develop a program of relief or respite care for families with developmentally disabled members. Background on the respite care approach in Montgomery County (Maryland) is reviewed, and a long range and immediate goals of the project are outlined. Noted among results of a survey to determine…

A survey of 124 families with mentally retarded children identified those families who did and did not use respite care services. Families who tended to use respite care were larger, made greater use of professional support services, and had children with more severe handicaps and more serious behavior problems. (Author/JDD)

This site visit report describes activities, strengths, and challenges of the Area Agency for Developmental Services in Region VI of New Hampshire, with an emphasis on bringing people with developmental disabilities out of the state institution to community-based services. The agency provides case management services, family support services, and…

Basic information about respite care for individuals with disabilities and their families is presented in a question-and-answer format. The following questions are addressed: "What is respite?"; "Who needs respite services?"; "Who provides respite services?"; "What kinds of services are provided?"; "How…

Describes respite care, a temporary relief service for families with developmentally disabled members at home, as an essential element in preventing institutionalization of disabled persons. Major approaches for providing respite care are identified. The advantages and disadvantages of the different approaches are discussed. (Author/JAC)

This report describes the Home and Community Based Services (HCBS) Waiver to section 1915 (c) of the Federal Social Security Act that was obtained by the New York State Office of Mental Health. The HCBS Waiver affects the services provided to children and adolescents with serious emotional disturbances. Three statutory requirements are included in…

Visits were made to selected respite care and crisis nursery programs in order to describe the programs and services they offered to families of young children with special needs and to learn more about the families who used the services and the staff who provided them. The visits to 10 crisis nurseries and 24 respite care programs resulted in…

This report focuses on positive practices in providing support services to families of children with severe disabilities and chronic illnesses, based on visits to three sites in Maryland: the Family Support Program at the Kennedy Institute in Baltimore, the Coordinating Center for Home and Community Care, and Sick Kids Need Involved People (SKIP).…

The Family Support Project in Lansing, Michigan, provides a variety of family support services to help maintain severely mentally and severely multiply impaired children in their own communities, and whenever possible, in their own homes. Services offered include case management, family therapy, respite services, special needs purchases,…

Proceedings are presented from a 1980 conference on community based services for families of developmentaly disabled children. The following ten papers are included: "Leading Edge Services to Families of Persons with Developmental Disabilities" (R. Perske); "Family Resource Services and Support Systems for Families with Handicapped…

This article discusses the role of organized religion in providing respite services to families of children with disabilities. Respite programs using church volunteers are seen as an opportunity for new and effective partnerships between secular service systems and the religious community. Model programs are described. (PB)

This "Feature Issue" of the quarterly journal "Impact" presents 19 brief articles on family support systems in the United States for persons with developmental disabilities and their families. Emphasis is on provisions of Public Law 99-457. Articles include: "Family Support in the United States: Setting a Course for the…

This paper reports on several projects conducted in Georgia over the past 2 years that move the development of respite care services toward the goal of becoming a "cooperative, collaborative, and coordinated" effort. An overview of respite care in Georgia is provided as well as a summary of strategies used to provide such care. Emerging…