Background: Many family carers find the support they receive in respect of their child's challenging behaviour unhelpful. This study sought to identify carer perceptions of the ways in which support is unhelpful and how it could be more helpful. Methods: Thirteen mothers, caring for a child with intellectual disability and challenging behaviour,…

The nation's child protection system (CPS) has historically focused on preventing maltreatment in high-risk families, whose children have already been maltreated. But, as Jane Waldfogel explains, it has also begun developing prevention procedures for children at lower risk--those who are referred to CPS but whose cases do not meet the criteria for…

This annotated bibliography addresses issues, principles, programs, and research about respite care published in articles and books from 1978-1988. It covers a wide range of topics, from comprehensive overviews of respite issues, services, and policies to descriptions of specific respite care program models. A number of the bibliographic entries…

A survey of 124 families with mentally retarded children identified those families who did and did not use respite care services. Families who tended to use respite care were larger, made greater use of professional support services, and had children with more severe handicaps and more serious behavior problems. (Author/JDD)

The Family Support Project in Lansing, Michigan, provides a variety of family support services to help maintain severely mentally and severely multiply impaired children in their own communities, and whenever possible, in their own homes. Services offered include case management, family therapy, respite services, special needs purchases,…

The manual discusses home based approaches to support families of developmentally disabled children. The first section presents in question and answer format the rationale for such support services. Succeeding sections address the following aspects: respite care, sitter/companion services; parent counseling, education, and training; in home…

The Family to Family program provides relief to families with emotionally impaired children through regular out-of-home respite care with host families. The overall goal of the program is to keep families with seriously emotionally impaired children intact, thus avoiding out-of-home placement. The program therefore involves, in addition to…

This evaluation report of the Family to Family Program assesses parental attitudes towards their Family to Family experience and the functioning of their emotionally impaired children. Topics include administration and administrative support; recruitment of consumer families; identification of host families; consumer support services; and consumer…

This evaluation report of the Family to Family Program assesses parental attitudes towards their Family to Family experience and the functioning of their emotionally impaired children. It reviews issues of goal achievement; the impact on the targeted problem; service population demographics; and sustainability. Related topics include…

This bulletin reflects the commitment of Syracuse University's Center on Human Policy to the idea that children belong with families. The bulletin contains a policy statement which recommends; that all children, regardless of disability, belong with families and need enduring relationships with adults; that families with severely disabled children…

Family support services are systematic efforts to support natural, adoptive, or foster families who have a family member with a disability. Programs vary in the types of services offered, goals, and number of families served. The most promising approaches to family support provide services that are flexible and individualized, build on informal…

The use of crisis nursery care as a viable alternative for the consumer experiencing chronic and ongoing family crises calls for consideration of various programmatic and staffing issues. Combinations of family problems, including homelessness, substance abuse, incarceration, family violence, and chronic illness of a family member, may precipitate…

In early 2000, the Center on Human Policy started to receive reports that children with complex medical needs were being placed in nursing homes because of home care nursing shortages. Sensing that framing the issue as a nursing shortage directed solutions that revolved around nursing agency staff recruitment and retention strategies, the authors…

We examined the service needs of foster families with children who have disabilities. Foster parents in a large Canadian city were asked "What services or supports would be helpful to you?" The responses to this question were edited for clarity and to eliminate redundancies, and sorted into piles of like statements by a group of 15…

This longitudinal study inventoried the types of services accessed by a sample of Alberta families of children with or at-risk for disabilities. We explored the role of severity of disability, parental stress, and family income on services accessed. With few exceptions, services were accessed more frequently as the children's lives progressed but…