This fact sheet summarizes issues in the provision of respite services for families with children suffering from severe emotional disturbances. Background information supports the unmet need for respite care services to families caring for such children at home. A definition of "serious emotional disturbance" is provided and typical…

In spite of the growing awareness and development of respite services, many families in need of them have little or no access. This is especially true for families whose children have emotional handicaps. A rationale for respite services supports parents' entitlement to respite care, its importance to all family members, and its help in improving…

This paper profiles nine model programs for supporting families who care for a child with a severe illness or one or more disabilities and discusses current trends as they emerged from interviews with key persons in the field. Core components examined include self-help, advocacy, parent education, respite care, family-centered case management, and…