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Direct linkSapfo Lignou; Mark Sheehan; Ilina Singh – Research Ethics, 2024
Many research institutions and funders have recently stated their commitment to actively support and promote 'Equality, Diversity and Inclusion' (EDI) in various aspects of health research including Patient and Public Involvement (PPI). However, translating this commitment into specific research projects presents significant challenges that…
Descriptors: Foreign Countries, Medical Research, Patients, Inclusion
Sankary, Lauren R.; Zelinsky, Megan E.; Ford, Paul J.; Blackstone, Eric C.; Fox, Robert J. – Research Ethics, 2023
The ethical recruitment of participants with neurological disorders in clinical research requires obtaining initial and ongoing informed consent. The purpose of this study is to characterize barriers faced by research personnel in obtaining informed consent from research participants with neurological disorders and to identify strategies applied…
Descriptors: Informed Consent, Medical Research, Neurological Impairments, Barriers
