Having severe Asthma and trying to maintain a social life isn't easy, but when one adds the disability of Multiple Chemical Sensitivity (MCS) to the combination, the challenges become even tougher. As a dancer with both Asthma and MCS, the author was forced to give up the sport for 15 years before finding a group of line dancers that were…

Celiac disease is a genetic autoimmune disorder characterized by a heightened sensitivity to gluten, the protein in wheat, barley and rye. The disease is more common than most people think, affecting approximately 3 million in the United States, about 1 in 100. One of the most notable things about celiac disease is that up to 97 percent of…

A rare disease or condition is defined by federal legislation such that it: (1) affects less than 200,000 persons in the U.S.; or (2) affects more than 200,000 persons in the U.S. but for which there is no reasonable expectation that the cost of developing and making available in the U.S. a drug for such disease or condition will be recovered from…

Imagine a magical treehouse hidden in the woods, with secret doors and rope swings--the stuff of one's wildest dreams! Imagine children rolling their wheelchairs all the way around a lake and arriving at this wondrous place. At Camp Twin Lakes (CTL), a not-for-profit organization in Georgia, one doesn't have to imagine--it's the real thing. Each…

When dealing with families that have been somatically fixated, it is important to initially focus on the symptoms, while not getting dragged into the way that the symptoms have become a centrally organizing event for the family. This allows the clinician to connect with the family around the physical symptoms, which they have become hypervigilant…

In this article, two marching band students from 2009 Bands of America Grand National Championship finalist bands show how students of all abilities benefit from involvement in band and music. (Bands of America is a program of Music for All.) Emily Ingram of James Bowie High School, Texas, and Cameron McCanless of Avon High School, Indiana, have…

Obesity increases the risk of many health conditions, including heart disease, type 2 diabetes, cancers, high blood pressure, lipid disorders, stroke and more. While obesity affects more than one third of all adult Americans, people with disabilities are more likely to be overweight or obese and often have fewer tools for controlling weight at…

Of the nearly 7,000 rare diseases identified by the National Institutes of Health (NIH), only a few hundred currently have treatments. The development of therapies for rare diseases is often hampered by the special challenges of conducting the needed studies for rare disease drugs and medical devices, such as small numbers of patients and the fact…

Newborn screening is a test done on every child born in the US shortly after birth to detect diseases where, if not diagnosed and treated in the newborn period, the child will suffer significant trauma, disability or die. A few drops of blood from each baby's heel is put on a card and sent to the state's public health lab for testing. Most states…

Probably one of the most challenging dilemmas facing people with epilepsy and parents of children with epilepsy are the questions of "if," "who," "when," and "how" to tell others about the epilepsy. There is fear of stigma and rejection. Yet there remains the need to reveal seizures before they reveal themselves without one's control. Telling…

The arrival of summer signals a season of endless days of swimming, fishing, summer camps, and other outdoor activities. For children with chronic or terminal illnesses, it can be difficult to participate in many of these activities as well as challenging for parents to find summer camps that not only engage their children, but also offer the…

This article presents part 2 of the series on emergency preparedness. Here, the author offers suggestions that exceptional families can use to prepare for emergencies. While the circumstances--terrorist events, disease epidemics, natural disasters--may vary, emergency preparedness experts agree on one thing: It is important for families,…

This article presents a story of a little girl's courage, a mother's determination, and the healing power of oxygen. Grace was born on March 6, 1999 at full term, and Shannon says her pregnancy and delivery were uncomplicated. Within days of arriving home, however, Grace's condition took a serious turn. At an ophthalmologist visit when Grace was…

Meeting the needs of a loved one with a disability or complex medical condition presents challenges everyday, and it becomes very easy for a parent or caregiver to allow concerns such as dental health to fall by the wayside in the face of other priorities. However, healthy teeth and gums are necessary for overall health. People with special needs…

Although neurological anomalies seem to be on the rise, this author wonders if the disorder known as autism is truly a genuine epidemic. Marcum explains why a better way of labelling might be more helpful. He contends that autism is not a "disease," but rather a syndrome--a collection of symptoms. To label all brain disorders or developmental…