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Guyard, Audrey; Michelsen, Susan I.; Arnaud, Catherine; Lyons, Alan; Cans, Christine; Fauconnier, Jerome – Research in Developmental Disabilities: A Multidisciplinary Journal, 2012
Living with a child with a disability can affect family life in various domains. Impacts on time, expenses, work, relationships within the family, social relationships and physical and psychological health can be observed. The Family Impact of Childhood Disability (FICD) is a specific instrument designed to assess this situation. Used in a…
Descriptors: Family Attitudes, Family Life, Cerebral Palsy, Disabilities
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Young, Bridget; Rice, Helen; Dixon-Woods, Mary; Colver, Allan F.; Parkinson, Kathryn N. – Developmental Medicine & Child Neurology, 2007
This qualitative study investigated what disabled children thought most important in their lives and examined how well their priorities are represented in KIDSCREEN, a generic health-related quality of life (HRQoL) instrument. Participants were a subgroup of families who had previously taken part in a study of quality of life and participation in…
Descriptors: Grounded Theory, Recreational Activities, Family Life, Quality of Life